NVAC l February 2020 l Day 2, Pt 3: New Vaccination Requirements & Counseling Coding Changes


>>ALL RIGHT. LET’S GO AHEAD AND GET STARTED WITH OUR AFTERNOON
SESSION. IS DR. PARK ON THE LINE?>>YES, I AM, THANK YOU.>>LET ME MAKE OUR INTRODUCTION AND WE’LL
GET GOING. OUR NEXT SESSION IS EXPERIENCES FROM THE FIELD,
HAWAII’S VACCINE REQUIREMENTS FOR SCHOOL ENTRY. IN THIS PRESENTATION, WE’LL HEAR ABOUT HAWAII’S
EXPERIENCE DEVELOPING, PASSING, REQUIREMENTS FOR SCHOOL ENTRY AND PROCESS WORKING WITH
HESITANT PARENTS, USING SOCIAL MEDIA TO ENGAGE STAKEHOLDERS. DR. SARAH PARK, STATE EPIDEMIOLOGIST FROM HAWAII
WILL PRESENT ON THE PHONE. TAKE IT AWAY.>>I INTEND TO GIVE A BRIEF PRESENTATION AND
OPEN UP TO QUESTIONS BECAUSE I THINK DIALOGUE IS PROBABLY MORE HELPFUL TO YOU ALL. SO AS YOU’VE SEEN IN THE TITLE, FINALLY TWO
STEPS FORWARD, IT’S BEEN A VERY, VERY LONG PROCESS TO GET WHETHER WE ARE. HOWEVER, EVEN AS WE’VE MADE THIS ONE GREAT
SUCCESS, WE’RE ALSO ENCOUNTERING AS YOU MIGHT IMAGINE A LOT OF ROAD BLOCKS BEING PUT IN
OUR WAY. AND WE’RE ANTICIPATING MORE ISSUES COMING
UP. SO NEXT SLIDE PLEASE. SO, THIS NEXT SLIDE REALLY GIVES YOU THE VERY
SMALL VERY SMALL NUTSHELL OF THE PROCESS WHICH AS YOU CAN SEE IT STARTED WITH ACKNOWLEDGING
THAT THIS, OUR RULES REGARDING THE IMMUNIZATION REQUIREMENTS, WERE LAST AMENDED IN 2001. IN THE STATE OF HAWAII, RULES WILL DESCRIBE
IMMUNIZATION REQUIREMENTS FOR CHILDREN IN SCHOOL. STATUTE SAYS THERE’S SUPPOSED TO BE THAT CHILDREN
AND STUDENTS IN GENERAL, SO SECONDARY SCHOOLS AS WELL, NEED TO MUST BE IMMUNIZED TO BE IN
SCHOOL. BUT THAT THE DEPARTMENT OF HEALTH SETS THE
RULES IN TERMS OF HOW THOSE REQUIREMENTS ARE ACTUALLY DESCRIBED, WHAT THEY ARE, AND THE
INTERVALS, ET CETERA, AND ALL THAT. SO IT’S SOMEWHAT UNIQUE FROM SOME OTHER STATES
WHERE OTHER STATES HAVE TO BASICALLY GO TO THEIR STATUTE AND CHANGE STATUTE TO ENACT
CERTAIN REQUIREMENTS, WHEREAS OUR CHANGES ARE ENACTED VIA THE RULES BECAUSE STATUTE
ALREADY EXISTS THAT REQUIRES CHILDREN SHOULD BE VACCINATED. THE RULES PROVIDE THE MEAT OR DETAIL, IF YOU
WILL. SO THOSE RULES WHY LAST AMENDED IN 2001. AND BASICALLY WE’VE BEEN WORKING ON UPDATING
OUR HEALTH REQUIREMENTS FOR PRESCHOOL, SCHOOL, POST SECONDARY SCHOOL ATTENDANCE, WITH INPUT
FROM MULTIPLE STAKEHOLDERS, PRIMARILY SCHOOLS BUT ALSO PEDIATRICIANS AND COMMUNITY MEMBERS
SUPPORTIVE OF VACCINATION, AND LISTENING TO THOSE WHO VOICE OBJECTIONS TO IMMUNIZATION
REQUIREMENTS. NOW, AS FAR AS, YOU KNOW, AGAIN, THE LAST
TIME THESE WERE AMENDED WAS 2001, SO I’M SURE THAT YOU’RE VERY FAMILIAR WITH THE FACT THERE
HAVE BEEN A LOT OF CHANGES TO OUR IMMUNIZATION ACIP RECOMMENDATIONS. I SAY WE IN HAWAII CAN MAKE CHANGES TO OUR
REQUIREMENTS, LIST OF VACCINES, IF YOU WILL, THERE ARE STEPS THAT NEED TO BE THAT WE NEED
TO GO THROUGH AND THAT REQUIRES LEGAL REVIEW, REQUIRES STAKEHOLDERS INPUT, SO GOES BACK
AND FORTH. I WOULD SAY PROBABLY THE BIGGEST HOLDUP WAS
LEGAL REVIEW WITH OUR ATTORNEY GENERAL. EVERY TIME WE MADE CHANGES WE HAD TO SEND
CHANGES INTO THE DOCUMENT BACK TO THE ATTORNEY’S OFFICE TO REVIEW EVERY STEP OF THE WAY.
AND I WOULD SAY REALLY WE STARTED THIS PROCESS BACK IN ABOUT 2005 OR SO, FRANKLY AROUND WHEN
I STARTED WITH THE STATE BECAUSE MY BACKGROUND IS I’M A PEDIATRIC INFECTIOUS DISEASE SPECIALIST. I GOT HERE, I WAS A LITTLE BIT APPALLED TO
FIND OUR IMMUNIZATION RULES DID NOT INCLUDE PNEUMOCOCCAL CONJUGAL VACCINE FOR REQUIREMENTS,
AND YET IT HAD BEEN ON RECOMMENDATIONS FROM ACIP FROM EARLY 2000s. SO THAT’S WHAT STARTED THE PROCESS, WE REALIZED
THERE WERE MORE AND FOUND MORE VACCINES BEING RECOMMENDED BY ACIP, WE HAD TO INCLUDE THOSE. THIS, LIKE I SAID, THIS SLIDE SIMPLIFIES THE
PROCESSE WE UPDATED, SIGNED BY OUR GOVERNOR IN AUGUST OF LAST YEAR. NOW IMMUNIZATION REQUIREMENTS ALIGN WITH ACIP. THE OTHER STICKLER FOR US IN THE STATE OF
HAWAII WAS THE FACT THAT THE WE COULDN’T DIRECTLY ADOPT THE ACIP GUIDELINES AS IS. WE ACTUALLY TO GO THROUGH A PROCESS BACK IN
I BELIEVE 2015 WHERE WE ACTUALLY HAD TO GET A BILL PASSED BY OUR LEGISLATURE TO ALLOW
US IN THE STATE OF HAWAII TO ADOPT THE FEDERAL GUIDELINES BECAUSE THERE’S A STATUTE IN THE
BOOKS THAT PRECLUDES THE STATE FROM AUTOMATICALLY ADAPTING ANOTHER ENTITY, EVEN A FEDERAL ENTITY
OR STANDARD MEDICAL PRACTICE, WE COULD NOT OUTRIGHT ADOPT ANOTHER GROUP’S OR COMMITTEE’S
OR STANDARDS RECOMMENDATION, SO WE ACTUALLY HAD TO GO THROUGH ADDITIONAL PROCESS OF CHANGING
OR ADDING THAT INTO OUR STATUTE. SO WE CAN NOW REFER TO THAT, THAT’S WHY WE
WERE ABLE TO MOVE FORWARD ON OUR RULES AND THAT’S WHERE WE ARE NOW. SO IF YOU GO TO THE NEXT SLIDE THAT’S JUST
A FILLER SLIDE TO BASICALLY ALLOW FOR JUST SAYING, YOU KNOW, THIS WAS A LONG PROCESS,
IT WAS A LOT OF GOING BACK AND FORTH WITH OUR STAKEHOLDERS BECAUSE WITH EACH ADDITION
AS WE WENT THROUGH THE LONG PROCESS, EVERY TIME WE THOUGHT WE HAD IT, WE WERE FINISHED,
THERE WOULD BE A NEW VACCINATION THAT WOULD BE ADDED TO THE ACIP GUIDELINES, AND THEN
WE WOULD HAVE TO GO BACK TO THIS DRAWING BOARD AND GOING BACK AND FORTH WITH OUR ATTORNEY
GENERAL, AND, YOU KNOW, BASICALLY UNTIL WE GOT TO THAT POINT WHERE WE COULD ACTUALLY
ADOPT OUTRIGHT THE ACIP GUIDELINES WE WERE GOING AROUND AND AROUND IN CIRCLES. EVEN THEN IT TOOK US SEVERAL MORE YEARS TO
GET TO THE POINT WHERE WE COULD ACTUALLY ESTABLISH THE RULES. THERE WERE, AS YOU CAN IMAGINE, QUITE A LOT
OF VOCAL PROTEST FROM ANTI VAXERS QUARTERS. WE HEARD THEM OUT IN PUBLIC HEARING AS REQUIRED
BY LAW BEFORE RULES WERE ENACTED. THERE WERE PUBLIC HEARINGS IN EACH COUNTY. THEY WERE QUITE VOCAL PROTESTS AND ALSO QUITE
A FEW SUPPORTERS. AND THAT WAS IT WAS YOU KNOW, FOR MY STAFF
I’D SAY THEY WERE GRATEFUL TO HEAR FROM THE SUPPORTERS BECAUSE THIS HAS BEEN SUCH A LONG
PROCESS. NEXT SLIDE, I’LL GO OVER QUICKLY WHAT OUR
QUOTE/UNQUOTE NEW VACCINATION REQUIREMENTS ARE AND BY THIS YOU CAN SEE WHERE WE NEEDED
WORK AND THE UPDATES WERE REALLY, REALLY REQUIRED ESSENTIALLY FROM OUR PERSPECTIVE. SO THE NEW VACCINATION REQUIREMENTS WHICH
WILL BE EFFECTIVE AS OF COMING SCHOOL YEAR, SO WE’RE GIVING BASICALLY EVEN THOUGH CAME
INTO IT WAS MADE EFFECTIVE I SHOULD SAY SIGNED BY OUR GOVERNOR AS OF LAST YEAR, IT WON’T
ACTUALLY BE ENFORCED OR IMPLEMENTED AS OF THE COMING SCHOOL YEAR TO GIVE SCHOOLS AND
PARENTS TIME TO MAKE SURE THAT THEY’RE AWARE, FULLY AWARE OF THE REQUIREMENTS AND IF THERE
ARE STUDENTS WHO HAVEN’T CONFORMED TO THE GUIDELINES THAT THEY HAVE THAT TIME TO MAKE
SURE THEY DO CONFORM TO THE GUIDELINES. THE NEW VACCINATION REQUIREMENTS FOR THE CHILD
CARE FACILITY, PRESCHOOLS, BASICALLY ADDS PCV VACCINE AND HEPATITIS A VACCINE. K 6 FOLKS, KIDS, ADDING HEPATITIS A VACCINE. NEXT SLIDE. FOR 7th GRADERS, THE CRITICAL ONE I THINK,
PROBABLY THE BIGGEST CHANGE HONESTLY FOR MOST KIDS, OR AT LEAST THE ONES WHO GIVE THEM NOTICE
AND THEIR PARENTS NOTICE AS WELL AS SCHOOLS IS THE HPV VACCINE, PRIMARILY, BUT ALSO MENINGOCOCCAL
AND TDAP, AND 7th THROUGH 12th GRADERS. FOR 7th THROUGH 12th GRADERS IT’S GOING TO
BE ENFORCED FOR NEW STUDENTS INTO THE SCHOOL SYSTEM, SO THOSE STUDENTS WHO ALREADY EXIST
IN THE SYSTEM, THAT ALSO GOES THROUGH K 6, THOSE KIDS ALREADY EXISTING WILL THE GRANDFATHERED
IN SO TO SPEAK. THEY WILL NOT BE DIRECTLY HELD TO THE NEW
SEVENTH GRADE REQUIREMENT, FOR EXAMPLE, FOR 7 12 OR NEW K 6 REQUIREMENT AT LEAST UNTIL
THOSE K 6 AGE OUT AND GO TO 7th GRADE. SO IF YOU HAVE QUESTIONS, I CAN EXPLAIN THAT
AFTER THIS. BUT IF YOU GO TO THE NEXT SLIDE YOU’LL SEE
THE POSTSECONDARY SCHOOL REQUIREMENTS, YOU’LL SEE NOW WE’VE ADDED TO OUR REQUIREMENTS, I
MEAN, AGAIN, THIS SHOWS WHERE THE GAPS WERE IN OUR PREVIOUS RULES. AND THEY WERE HORRIBLE GAPS THAT EXISTED UP
UNTIL THE RULES WERE UPDATED AS OF LAST YEAR. AND THESE WILL BE, AS I SAID, ENFORCED IN
THE COMING SCHOOL YEAR. SO THE PROPOSED SECONDARY SCHOOL STUDENTS
WE HAVE VARICELLA, TDAP, MCV, THE CRITICAL ONE. IF YOU GO TO THE NEXT SLIDE, SO OBVIOUSLY
WE WANT TO MAKE SURE ALL OUR CLINICIANS ARE WELL AWARE OF WHAT’S GOING ON, THAT THEY HAVE
ALL THE INFORMATION THEY NEED SO THEY CAN TALK TO STUDENTS AND THEIR PARENTS. SO WE SENT OUT SUMMARY GUIDE, WE SEND OUT
ABRIDGED COPY OF OUR RULES. YOU CAN ACCESS IF YOU’RE INTERESTED THE FULL
DOCUMENT, THE URL THAT’S ON THE SLIDE. WE’VE PROVIDED THE COPY OF THE ACIP GUIDELINES. AND THEN MEDICAL EXEMPTION FORM FOR OUR PHYSICIANS,
REVAMPED, YOU’LL SEE IN THE NEXT FEW SLIDES, COMING LATER HOW WE REVAMPED. AND WE’VE PROVIDED THEM BACK TO SCHOOL CAMPAIGN
POSTER TO HELP THEM BY POSTING IT IN THEIR WAITING ROOMS SO THEY CAN INFORM THEIR PATIENTS. NEXT SLIDE PLEASE. THE MEDICAL EXEMPTION FORM PREVIOUSLY OUR
QUOTE/UNQUOTE MEDICAL EXEMPTION FORM WAS A LETTER FROM CLINICIANS WHO JUST NEED TO CERTIFY
THEY ARE A PHYSICIAN OR HEALTH CARE PROVIDER, LICENSED HEALTH CARE PROVIDER, AND THEY FELT
IN THEIR MEDICAL OPINION THAT SOMEONE WAS PRECLUDED FROM CERTAIN VACCINE. AND SO THAT WAS THE PREVIOUS. BUT NOW WE BASICALLY UPDATED, SINCE WE WERE
UPDATED OUR RULES WE TOOK THE OPPORTUNITY TO UPDATE OUR MEDICAL EXEMPTION FORM TO ALIGN
WITH WHAT ACIP HAS RECOMMENDED FOR MEDICAL WHAT IS ALLOWABLE FOR MEDICAL EXEMPTION AND
LOOKED TO MULTIPLE OTHER STATES TO ADOPT, YOU KNOW, FORMATS FROM OTHER STATES. AND SO AS YOU CAN SEE, FROM THE SLIDE, AT
LEAST, THESE ARE SORT OF THE BULLET POINTS. AND WE BASICALLY SAID THE STUDENT, PARENT
OR GUARDIANS NEEDS TO GIVE THE FORM, BE GIVEN THE FORM BY THE CLINICIAN AND A COPY NEEDS
TO BE SENT TO OUR IMMUNIZATION BRANCH WHICH BY THE WAY WE’RE ALREADY ENCOUNTERING ISSUES
WITH ANTI VAXERS, ARGUING THAT BECAUSE OF HRSA WE SHOULDN’T BE ALLOWED INFORMATION,
INTERESTING, HEALTH ASPECTS, AT ANY RATE THAT’S AN ASIDE. NEXT SLIDE. YOU CAN SEE I DON’T EXPECT YOU TO READ THIS,
BUT YOU CAN SEE THE NEW MEDICAL EXEMPTION FORM IS QUITE THE POINT SHOWING YOU THIS IT’S
QUITE FORMAL NOW, AND IF YOU WERE TO LOOK AT IT, YOU SEE IT DOES AS I SAID CONFORM TO
THE ACIP RECOMMENDATIONS IN TERMS OF WHO SHOULD BE EXEMPTED FOR MEDICAL REASONS, FROM CERTAIN
VACCINES. NEXT SLIDE. THIS GIVES THE SECOND PAGE OF THAT FORM. SO, AGAIN, WE ADAPTED THIS FROM LOOKING AT
OTHER STATES’ FORMS, SO IT’S VERY SIMILAR TO, IF YOU LOOKED AT LIKE, FOR EXAMPLE, NORTH
CAROLINA, WASHINGTON STATE, SOME OF THE OTHER STATES’ FORMS. WE WANTED TO TRY AND STANDARDIZE TO MAKE IT
EASY FOR CLINICIANS TO BE ABLE TO CHECK OFF A BOX AND BE INFORMED AS TO WHAT IS THE SORT
OF RECOGNIZED STANDARD MEDICAL PRACTICE. NEXT PAGE. OR NEXT SLIDE. SO THIS IS JUST TO SHOW YOU A COPY OF OUR
MEDICAL I’M SORRY, OF OUR CAMPAIGN. AND IT’S JUST TO SHOW YOU LIKE THAT HOW WE’RE
WE’VE LAUNCHED IN OCTOBER, MY SLIDES ARE GIVING ME TROUBLE HERE. WE LAUNCHED OUR CAMPAIGN LAST OCTOBER. WE’RE TARGETING PARENTS, SPECIFICALLY 7th
GRADERS, RISING 7th GRADERS, BECAUSE AS I SAID THAT’S WHERE I THINK WE’LL SEE A LOT
OF PEOPLE TAKEN ABACK BECAUSE OF COURSE WE’VE HAD FOLKS HAVE NOT BEEN THIS FAMILIAR WITH
THE HPV VACCINE, EVEN POTENTIALLY MCV, HOPEFULLY NOT TDAP BUT WE SUSPECT THIS WILL BE NEW FOR
SOME PARENTS, HOPEFULLY ENCOURAGING AND ALLOWING THEM TO GET INFORMED. WE’RE GOING AN ALL OUT CAMPAIGN WITH PERIODIC
ADS ON THE RADIO AND TV, PRINT ADS AS WELL. AND POSTERS AND FLYERS. NEXT SLIDE SHOWS YOU OUR ACTUAL CAMPAIGN POSTER
THAT WE’RE DISTRIBUTING TO HEALTH CARE PROVIDERS AND OTHERS. THE LAST COUPLE SLIDES I SHOW YOU THE IN HAWAII
WE HAVE ALLOWANCES, MEDICAL EXEMPTIONS, ALLOWANCE FOR CLINICAL RELIGIOUS EXEMPTION. WE TECHNICALLY DO NOT HAVE PHILOSOPHICAL EXEMPTION
ALLOWANCE. HOWEVER, I WOULD SAY THAT THE RELIGIOUS EXEMPTION
BASICALLY PARENTS JUST HAVE TO WRITE IN THAT IT’S AGAINST THEIR PERSONAL BELIEFS, THEY
DO NOT ACTUALLY HAVE TO STATE WHAT THEIR PERSONAL BELIEF IS, WHAT THEIR RELIGION IS, OR SHOW
PROOF OR ANYTHING LIKE THAT. THEY JUST NEED TO SAY IT’S AGAINST THEIR PERSONAL
BELIEF. SO AS YOU CAN IMAGINE, WE RECOGNIZE THAT THERE
ARE PEOPLE OUT THERE, PROBABLY USING THE RELIGIOUS EXEMPTION AS SUBSTITUTE FOR PHILOSOPHICAL
EXEMPTION. YOU CAN SEE SPLIT BY COUNTIES, DIFFERENT COLORED
LINES, OVER TIME FROM THE 2004 2005 SCHOOL YEAR ALL THE WAY TO THE 2016 2017 SCHOOL YEAR
AND PROPORTION OF STUDENTS THAT HAVE REQUESTED SUCH EXEMPTION HAS BEEN STEADILY RISING, AND
THAT HAWAII COUNTY BEING THE LEADER, SO TO SPEAK, OUR SMALLEST COUNTY, HAWAII COUNTY
GEOGRAPHICALLY IS OUR BIGGEST, AND OUR MOST RURAL COUNTY, BUT IT’S NOT NEARLY AS POPULOUS
AS THE OAHU OR HONOLULU COUNTY, OAHU ISLAND WHERE HONOLULU PRESIDES, 70% OF POPULATION
IS CONSIDERED THE URBAN ISLAND, WHERE THE OTHER ISLANDS ARE RURAL ISLANDS. AND THEN YOU CAN SEE THE BLACK LINE SHOWS
YOU JUST THE SLOW STEADY RISE. PERCENTAGE WISE YOU COULD ARGUE IT’S A SMALL
PERCENTAGE BUT IT’S CONCERNING THAT HERE, LIKE ELSEWHERE, WE’RE CONTINUING TO SEE THAT
RISE. THE NEXT SLIDE, AS OF THE LAST SCHOOL YEAR,
WE ACTUALLY STARTED MAPPING THESE DATA, AND IT’S AVAILABLE ON OUR WEBSITE. AND FOR PUBLIC VIEW. AND WE’RE JUST BASICALLY MAPPING OUT. THIS IS THE THE CAVEAT IS THESE ARE BY SCHOOLS,
OR SCHOOL DISTRICTS, SO TO SPEAK, AS OPPOSED TO BY ACTUAL AN INDICATION OF THE ACTUAL PERSON’S
RESIDENCE, SO THERE’S SOME CAVEATS BECAUSE OBVIOUSLY IF THERE’S A PRIVATE SCHOOL, PRIVATE
SCHOOLS COULD BE DRAWING FROM, YOU KNOW, MULTIPLE LOCATIONS THROUGHOUT AN ISLAND. BUT HAVING SAID THAT, WE FEEL THAT THIS IS
PROBABLY MAPPING OUT TO WHERE WE PROBABLY DO HAVE FOCUS, FOCI OF VACCINE ANTI VAX COMMUNITIES. THERE’S A BILL IN OUR LEGISLATURE GOING THROUGH
THE ROUNDS WHERE THE ANTI VAXERS ARE TRYING TO INTRODUCE NOW, A FORMAL CONSCIENTIOUS OBJECTOR
EXEMPTION. INTERESTING THING, AND FRANKLY A BIT OF A
HEADACHE FOR US, IT’S BEING PASSING THROUGH THE VARIOUS COMMITTEES BUT BEING GUTTED. SO IT’S BEEN BY THE JUDICIARY COMMITTEE THIS
TIME IN OUR HOUSE, AND IT’S APPARENTLY BEEN GUTTED COMPLETELY, GIVEN CURRENT CONCERNS
ABOUT NOVEL CORONAVIRUS, AND NOW LOOKS COMPLETELY DIFFERENT, MUCH TO THE DISMAY OF THE ANTI
VAXERS, ALSO I CAN’T SAY WE’RE VERY HAPPY ABOUT IT BECAUSE NOW IT’S A STUDY OF HOW STATE
OF HAWAII WILL VACCINATE THE PUBLIC SHOULD THERE BE A VACCINE AVAILABLE AGAINST CERTAIN
THREATS LIKE NOVEL CORONAVIRUS, AS WELL AS ACCOUNT FOR POTENTIAL ADVERSE EVENTS AND OTHER
ISSUES. NOT CLEAR YET HOW THAT BILL WILL EVENTUALLY
PLAY OUT, BUT WE’RE WATCHING THAT CLOSELY AS LONG AS THAT STAYS ALIVE THERE’S POTENTIAL
ORIGINALLY WORDS OF THE BILL, WHICH WAS AGAIN ALLOWING FOR CONSCIENTIOUS OBJECTORS WILL
GET REINSERTED. WE’RE WATCHING CLOSELY, AS ARE PARTNERS WHO
ARE SUPPORTIVE OF VACCINES. I’M GOING TO END THERE. YOU SEE A PICTURE OF MY SON. HE’S DEFINITELY ONE OF MY BIG REASONS WHY
I DO THE THINGS I DO. SO ANY QUESTIONS?>>ANY
QUESTIONS FROM MEMBERS OF THE COMMITTEE IN THE ROOM? MARY ANNE?>>THANK YOU, DR. PARK. WHAT IS THE STATUS OF ACCESS TO VACCINES IN
THROUGHOUT THE STATE? IS THERE GOOD ACCESSIBILITY? AND ARE THERE ANY BARRIERS TO OBTAINING VACCINES
NOW GIVEN THE MANDATES?>>YEAH, SURE. SO AS FAR AS ACCESS TO VACCINES, JUST LIKE
OTHER STATES, WE’RE RECIPIENTS OF THE VACCINES THROUGH THE VACCINES FOR CHILDREN PROGRAM. THROUGH THAT PROGRAM THAT HAS MADE GREAT INROADS
TO PROVIDING ACCESS TO VACCINES FOR THOSE WHO NEED IT.
AND SO, YOU KNOW, WE HAVE A NUMBER OF BASICALLY OUR PEDIATRICIANS ARE PARTICIPATING IN THE
PROGRAM AS WELL AS SOME FAMILY PHYSICIANS AND INTERNISTS AND THROUGH THAT PROGRAM WE
BELIEVE THAT KIDS ARE GETTING VACCINATED THAT NEED ACCESS TO THAT VACCINE, TO VACCINES THAT
ARE REQUIRED. THE HEALTH PLANS HERE ARE AWARE OF OUR VACCINE
REQUIREMENTS, AND BASICALLY HAVE SAID THEY WILL COVER ANYTHING THAT IS REQUIRED UNDER
THE STATE LAW, SO THAT HAS NOT BEEN A PROBLEM. ACTUALLY HAS BEEN TO MY, YOU KNOW, DELIGHT,
FRANKLY, WHEN WE’VE HAD OUTBREAKS AND WE’VE HAD TO MAKE RECOMMENDATIONS ON VACCINES AND
CHECK WITH THE HEALTH VACCINATIONS AND CHECK WITH THE HEALTH PLANS, FOR EXAMPLE, WHEN WE
HAD OUR BIG OUTBREAK AND RECOMMENDED MMR, HEALTH PLANS DID COME FORWARD AND SAY THEY
WOULD COVER THAT OUTBREAK DOSE. SO WE HAVE GOOD RELATIONSHIPS HERE IN THE
STATE OF HAWAII. AND SO WE DO BELIEVE THAT THE VACCINE ACCESS
IS GOOD. RELATIVELY GOOD. HOWEVER, WE DO CONSTANTLY EVALUATE THE SITUATION
TO SEE IF THERE ARE ANY OTHER ISSUES, ANY ISSUES THAT WE CAN ADDRESS. AND, FOR EXAMPLE, WE DO HAVE I BELIEVE WE’RE
THE ONLY STATE IN THE NATION THAT CONTINUES TO HAVE A STATEWIDE SCHOOL LOCATED FLU VACCINATION
PROGRAM. FLU VACCINES ARE NOT A REQUIREMENT UNDER STATE
RULES, WE DO BELIEVE IT’S AN IMPORTANT VACCINE AND WANT TO MAKE SURE IT’S ACCESSIBLE TO THOSE
THAT MIGHT NOT BE ABLE TO OTHERWISE ACCESS IT. WE TARGET PUBLIC SCHOOLS THAT HAVE AT LEAST
40% OF THEIR KIDS ON THE SCHOOL LUNCH PROGRAM, AND THEN ALL OF THE PUBLIC SCHOOLS ON THE
NEIGHBOR ISLANDS. FIRST IS TARGETING PUBLIC SCHOOLS ON OAHU,
URBAN ISLAND, SHALL I SAY, AND WE TARGET ALL THE PUBLIC SCHOOLS ON NEIGHBOR ISLAND THROUGH
THAT PROGRAM. WE DO A LOT TRYING TO MAKE SURE ACCESS IS
THERE.>>ROBERT?>>THANKS FOR THE PRESENTATION. REGARDING YOUR SCHOOL FOOD PROGRAM, CONGRATULATIONS
ON SUSTAINING THAT. WONDERFUL EXAMPLE. AND WONDERING IF YOU’RE ENVISIONING SCHOOLS
AS A SOURCE FOR CATCHING KIDS UP, AHEAD OF THE SCHOOL YEAR, EVEN THOUGH THE TIMING WOULD
BE DIFFERENT FROM YOUR FALL FLU CAMPAIGN?>>I’M SORRY, CAN YOU REPEAT THE QUESTION? I WAS DISTRACTED. WE HAVE A LOT OF THINGS GOING ON HERE IN HAWAII
RIGHT NOW AS YOU CAN IMAGINE. I’M TRYING TO MULTI TASK TO CALM DOWN FIRES. CAN YOU REPEAT THE QUESTION?>>SURE. DO YOU IMAGINE YOUR PRIMARY CARE, YOUR MEDICAL
HOMES WILL BE ADEQUATE FOR DELIVERING ALL THE CATCH UP VACCINES? ARE YOU GOING TO RECRUIT OR ENLIST SCHOOLS
TO HELP OUT OR SPECIAL EVENTS TO HELP OUT WITH CATCH UP?>>YES, THANK YOU FOR THAT QUESTION. SO OUR BELIEF IN TALKING WITH PEDIATRICIANS
IS THAT MAYBE WITH THE EXCEPTION OF HPV WE BELIEVE THAT THEY HAVE ALREADY MANY PEDIATRICIANS
SAY THEY HAVE ALREADY BEEN ADMINISTRATION HEP A VACCINATION, AND SO FOR INSTANCE THAT
IS NOT GOING TO BE AN ISSUE. TDAP OF COURSE THEY HAVE BEEN ADMINISTRATION,
MCV. THE ONLY ISSUE IS THE HUMAN PAPILLOMAVIRUS
VACCINE, BUT THE PEDIATRICIANS HAVE BEEN ORDERING THOSE VACCINES AND THESE VACCINES ARE ALSO
AVAILABLE AS I SAID THROUGH THE VFC PROGRAM. WE DON’T ENVISION MUCH NEED FOR ADDITIONAL
SORT OF VACCINE SUPPLIES AND SUCH, AND CERTAINLY HAVE NOT BEEN HEARING ANYTHING FROM OUR PROVIDER
PARTNERS OUT THERE. SO WE THINK IT WILL BE IT WILL BE FINE. ACTUALLY WE’VE BEEN ARGUING THAT ALL WE’RE
DOING WITH OUR IMMUNIZATION RULES IS ALIGNING WITH ACIP GUIDELINES, WHICH THE PEDIATRICIANS
ALSO ONE OF THE THINGS THEY HAVE BEEN ABIDING BY THAT SO IT MAKES IT EASIER. ONE OF THE ISSUES WITH OUR IMMUNIZATION RULES
WAS THE OLD SORT OF RULES, YOU KNOW, BECAUSE WE COULDN’T OUTRIGHT BEFORE ADOPT ACIP GUIDELINES,
BASICALLY THE OLD RULES HAD LIKE A SCHEDULE THAT WAS ACCORDING TO INTERVALS BY MONTHS. EXAMPLE, ONE PROBLEM PROVIDERS ENCOUNTERED
BECAUSE OF THAT AND PATIENTS AS WELL AND HEALTH PLANS WAS THAT HEPATITIS B VACCINE AS YOU
KNOW IS THE INTERVALS ARE BY WEEKS. BUT THE OLD INTERVALS WERE BY MONTHS SO IT
WAS VERY POSSIBLE A CHILD COULD BE VACCINATED QUOTE/UNQUOTE EARLY BY OUR IMMUNIZATION RULES,
BUT BECAUSE OF THE RULES THEY WOULD HAVE TO GET AN EXTRA HEP B DOSE, WHICH WAS A PROBLEM
BECAUSE THE HEALTH PLANS DIDN’T WANT TO COVER THAT EXTRA DOSE, IT WASN’T MEDICALLY NECESSARY,
AND OF COURSE YOU HAVE TO TALK TO PARENTS ABOUT WHY THE CHILD NEEDS AN EXTRA DOSE, IT’S
ALL BECAUSE OF NOT MEDICAL REASONS BUT BECAUSE OF THE LAW. SO WE THINK ACTUALLY OUR BY ALIGNING WITH
ACIP IT’S MAKING IT EASIER FOR PARENTS AS OPPOSED TO HARDER.>>AND MOLLY? THANK YOU, DR. PARK FOR YOUR PRESENTATION. I WAS CURIOUS WHAT HAWAII’S CURRENT HPV VACCINATION
RATES ARE IN ADOLESCENTS, AND SECOND QUESTION WHETHER YOU’VE HEARD FROM STATE LEGISLATORS
ABOUT ADDING REQUIREMENTS THROUGH RULES, AND IF YOU HAVE CONCERNS ABOUT YOUR LEGISLATURE
TAKING THAT AUTHORITY AWAY FROM YOU AND REQUIRING LEGISLATION IN THE FUTURE?>>YEAH, SO AS FAR AS THE VACCINATION, WE
DON’T YET HAVE A UNIVERSAL VACCINE REGISTRY. AND, YOU KNOW, SO WE DON’T HAVE LIKE QUITE
ACCURATE NUMBERS. WE HAVE TO REFER TO THE BRFSS SURVEY, THE
CEC SURVEY. I’M NOT ACTUALLY I DON’T THINK OUR VACCINATION
UPTAKE FOR EXAMPLE FOR HPV IS ANYWHERE AS GOOD AS ANYONE ELSE’S, UNFORTUNATELY. SO IT IS GOING TO BE INTERESTING TO SEE WHERE
THAT FALLS. I DON’T HAVE THE NUMBERS IN FRONT OF ME. I CAN GET BACK TO YOU IF YOU’D LIKE THAT INFORMATION,
JUST LET ME KNOW. AS FAR AS OUR CONCERNS ABOUT WHAT WILL BE
ALLOWED TO DO OR NOT ALLOWED TO DO IN THE FUTURE, THAT’S ALWAYS A CONCERN. WE’RE TRYING TO WORK WITH LEGISLATORS NOW
AND EDUCATE THEM ABOUT THE NEED FOR VACCINATIONS TO MAKE SURE THEY UNDERSTAND WHY IT IS IMPORTANT. IT IS INTERESTING THAT AS I MENTIONED THE
BILL THAT IS CURRENTLY GOING THROUGH OUR LEGISLATURE RIGHT NOW IT’S CLEAR THERE ARE LEGISLATORS
MINDFUL OF THE IMPORTANCE OF VACCINATIONS. IN LIGHT OF THE CURRENT SITUATION WITH THE
NOVEL CORONAVIRUS. SO, WE’RE HOPEFUL THAT MEANS WE HAVE SUPPORTERS
AMONG THE LEGISLATORS, WE KNOW FOR CERTAIN WE DO BUT WE ALSO KNOW THERE ARE LEGISLATORS
UNFORTUNATELY THAT ARE ALSO SWAYED BY ANTI VAXERS. SO IT’S AN ONGOING BATTLE I THINK THAT WE
CANNOT REST, WE’RE ARE NOT RESTING AT THIS POINT. THIS IS A SUCCESS IN OUR IMMUNIZATION RULES
BUT BY NO MEANS OVER IN TERMS OF OUR CONTINUED FIGHT TO MAKE SURE CHILDREN AND OUR COMMUNITY
ARE PROTECTED.>>DR. PARK, THANK YOU VERY MUCH FOR YOUR PRESENTATION. YOU’VE GOT A ROUND OF APPLAUSE COMING FROM
THE ROOM HERE. THANK YOU. [APPLAUSE]>>TAKE CARE OF THAT LITTLE ONE, MAHALA.>>THANK YOU, BYE BYE.>>NEXT PANEL IS SUCCESSFUL SHARING OF STORIES,
IN THIS PANEL I’D LIKE TO INVITE THE PANELISTS TO PLEASE COME TO THE STAGE. IN THIS PANEL THE PRESENTERS WILL SHARE INFORMATION
ABOUT STORY TELLING AND HOW TO UTILIZE IT TO ENCOURAGE TIMELY VACCINATION. WE’LL START OFF WITH DR. DAVID ROBERT GRIMES FROM OXFORD, SHARING HIS
WORK USING STORIES TO ENCOURAGE HPV VACCINATION PRESENTING OVER THE PHONE. FOLLOWED BY TAMIKA FELDER FROM CERVIVOR, SHARING
INFORMATION ON USING STORIES TO REDUCE STIGMA. SERESE MAROTTA FROM FAMILIES FIGHTING FLU
WILL SHARE BEST PRACTICES FOR USING PERSONAL STORIES. ZAHRA BARNES FROM SELF MAGAZINE WILL HIGHLIGHT
WAYS TO CREATE VIBRANT EDITORIAL CONTENT. THANK YOU FOR YOUR PARTICIPATION TODAY. DR. GRIMES, ARE YOU ON THE LINE?>>I AM INDEED.>>THE FLOOR IS YOURS, SIR.>>THANK YOU VERY MUCH. I’VE NEVER PROMOTED NEVER PRESENTED REMOTELY
SO THIS SHOULD BE A FIRST. I’M ALSO IRISH. I MIGHT SPEAK FAST SO PLEASE DO JUMP IN IF
I’M UNINTELLIGIBLE. I’M GOING TO TALK A LITTLE BIT TODAY ABOUT
COMBATING VACCINATION HESITANCY AND DISINFORMATION WITH LESSONS FROM IRELAND ON THE HPV VACCINE. IF WE COULD MOVE TO SLIDE 2 PLEASE. THE FIRST THING TO REALIZE IS THAT ANTI VACCINE
ACTIVISM IS NOT A NEW PROBLEM. THERE’S BEEN ANTI VACCINE SENTIMENT SINCE
THE 1700s, SINCE THE FIRST IMMUNIZATIONS. IT’S CHIEFLY ROOTED AROUND IDEOLOGICAL OPPOSITION
BASED ON MODE OF REASONING, IT IS NOT NECESSARILY ONE THAT HAS A HIGH COMMITMENT TO INTELLECTUAL
VERACITY OR FACT. THAT MAKES IT MALLEABLE. AND IT MAKES IT VERY PRONE TO GO FOR MORE
EXTREME POSITIONS, SOME OLD CARTOONS YOU CAN SEE WITH THE FRIGHTENING IMAGES AREN’T THAT
SHOCKING NOW BUT THEY ARE SOME OF THEM OVER 100 YEARS OLD. I THINK THE W.H.O. SAID IT VERY WELL IF WE GO TO THE NEXT SLIDE,
SLIDE 3 PLEASE. AND IN 2008, THEY SAID HOW ONE ADDRESSES THE
ANTI VACCINE MOVEMENT HAS BEEN A PROBLEM SINCE THE TIME OF JENNER, THE BEST WAY IS TO REFUTE
WRONG ALLEGATIONS AT THE EARLIEST OPPORTUNITY BY PROVIDING SCIENTIFICALLY VALID DATA. THOSE WORDS REMAIN VALID TODAY. SINCE 2008 WE’VE HAD A NEW EMERGENT DISRUPTIVE
FORCE, IN THE FORM OF SOCIAL MEDIA. SOMEHOW WE’VE BECOME EVEN MORE SUSCEPTIBLE
THAN EVER BEFORE. NEXT SLIDE, SLIDE 4. WE GET A LITTLE TASTE OF THAT. YOU CAN SEE THESE VERY FRIGHTENING MEMES THAT
PERPETUATE ACROSS SOCIAL MEDIA, LIKE VACCINES HAVE NEVER BEEN STUDY FOR SAFETY AND PHARMA
IS POISONING US, VACCINES HAVE DANGEROUS, ALL TOXIC WASTE. THIS KIND OF SENTIMENT IS NOT EVEN NOVEL,
IT’S JUST SO COMMON. REALLY SOMETHING WE HAVE TO REALIZE IS THE
INTERNET TRULY HAS BEEN WEAPONIZED. THAT’S NOT ENTIRELY SURPRISING. EVEN IN THE EARLY DAYS OF THE INTERNET, THE
ACADEMICS WERE LOOKING AT THIS FOUND THAT ANTI VACCINE PROPAGANDA WAS FLOURISHING BEFORE
SOCIAL MEDIA, THEY WERE COLONIZING THE INTERNET VERY EARLY ON. WE SEE EXTREME CLAIMS ABOUT VACCINES ACROSS
SOCIAL MEDIA, INVARIABLY FALSE OR MISLEADING. EVEN THOUGH THEY ARE EASILY DEBUNKED THEY
STILL SURVIVE AND SPREAD. PEOPLE BECOME AFRAID OF VACCINATIONS. THEY MAYBE REASONABLY ASSUME WHY WOULD THIS
BE SPREAD IF PEOPLE DIDN’T REALLY BELIEVE THIS AND IT CREATES FEAR. THAT FEAR CREATES A SLOWDOWN IN VACCINE UPTAKE. WHY ARE THESE MEMES AND CLAIMS SO EFFECTIVE
GIVEN IT’S SO MENDACIOUS? THEY ARE VISCERAL AND POWERFUL DESPITE THEY
LACK COMMITMENT TO OBJECTIVE REALITY. WHY DO THE SCORES SCARE PEOPLE? GO TO SLIDE 5 PLEASE. THE FIRST THING TO TALK ABOUT IS AVAILABILITY
HUERISTIC. WE ASCRIBE MORE WEIGHT TO THINGS WE CAN EASILY
REMEMBER. WE THINK IF WE CAN REMEMBER IT EASILY OR IF
IT STICKS IN OUR MIND, IT HAS TO BE IMPORTANT. THAT KIND OF SKEWS IT A LITTLE BIT BECAUSE
IT MAKES US MORE BIASED TOWARDS EXTREME EXAMPLES OR VERY FRIGHTENING CLAIMS. IT’S NOT ACTUALLY A FILTER FOR HOW ACCURATE
OR HOW TRUE OR REPRESENTATIVE THOSE CLAIMS ARE. ONLY HOW MUCH THEY STICK IN MEMORY. THE PROBLEM IS THAT WE ARE HUMAN. WE ARE SLAVES TO ANECDOTE. WE ARE SOCIAL CREATURES, THRIVE ON STORIES
WE SHARE WITH EACH OTHER. BECAUSE WE HAVE THIS FALLACY ANECDOTAL INCLINATION,
VERY FRIGHTENING STORIES CAPTURE OUR ATTENTION, BIAS OUR SENSE OF DANGER. WE GO, OH, I HEARD ABOUT THE VACCINE, I READ
IT KILLED SOMEONE ON FACEBOOK. THAT STICKS IN OUR MIND. WHAT DOESN’T STICK IN OUR MIND IS REAMS OF
DATA SHOWING EFFICACY. AFTER CLEAN WATER AND SANITATION THERE’S NOTHING
THAT SAVED MORE LIVES THAN VACCINATION, BUT THAT’S DRY AND ACADEMIC. THAT DOESN’T STICK IN OUR MINDS THE WAY A
FRIGHTENING MEME DOES, THIS BIAS TO EXTREME CLAIMS REGARDLESS OF
MERIT. SECOND FACTOR TO CONSIDER, SLIDE 6, ILLUSORY
TRUTH EFFECT, TENDENCY TO BELIEVE INFORMATION WILL BE CORRECT BECAUSE WE’VE HEARD IT IN
REPEATED FASHION. IF WE CONSTANTLY HEAR CLAIMS WE GIVE THEM
WEIGHT. THIS REPETITION CAN SOMETIMES SWAY US TO ACCEPT
SOMETHING THAT’S WRONG EVEN THOUGH WE KNOW BETTER, ON AN INTELLECTUAL LEVEL WE KNOW IT
TO BE WRONG, WE’RE MORE INCLINED TO BELIEVE SOMETHING BECAUSE WE’VE BEEN BAMBOOZLED WITH
IT. THIS IS THE PRINCIPAL BEHIND JOSEPH GOEBEL’S
BIG LIE, AND OFTEN, PEOPLE WILL COME TO BELIEVE IT. NAPOLEON SAID REPETITION IS WORTH A DAMN,
IT PRIMES US TO BELIEVE THINGS. IF WE LOOK AT ANTI VACCINE SENTIMENT ON SOCIAL
MEDIA, IT’S UNRELENTING, MULTI CHANNEL, CONSTANTLY VECTORED OUT THERE. BECAUSE OF THAT VECTORIZATION, THAT EXTREME
AGGRESSIVENESS AND PROMOTION, IT IS VASTLY OUTNUMBERING RELIABLE SOURCES. AND WITH MORE FRIGHTENING CLAIMS. THAT PUTS US IN A STRANGE POSITION. AGAIN, THIS PROCESS IS SUBCONSCIOUS. WE ACCEPT THIS THROUGH REPETITION. WE’RE NOT SITTING HERE WEIGHING UP LOGICALLY. THIS IS EXPLOITATION OF HUMAN BIAS. NOW, LET’S MOVE TO THE NEXT SLIDE, SLIDE 7. OTHER FACTORS COME INTO PLAY. FOR EXAMPLE, WE KNOW THAT EMOTIONAL CONTENT,
THINGS THAT MAKE US REACT WITH DISGUST OR FEAR ARE MORE LIKELY TO BE SHARED. WE’VE SEEN THAT WITH CONSPIRACY THEORIES AS
WELL. THE MORE FRIGHTENING, EXTREME, SCARE MONGERING,
MORE ATTRACTION I GET. TO THE AUDIENCE, THAT’S WEAPONIZED FOR ANTI
VACCINE SENTIMENT BECAUSE CLAIMS ARE FRIGHTENING. OTHER THING TO CONSIDER IS THE RUSSIAN FIRE
HOSE FALSEHOOD MODEL DESCRIBED BY RAND CORPORATION IN 2016. IT DOESN’T HAVE TO HAVE ANY CONSISTENCY OR
COMMITMENT TO OBJECTIVE REALITY. THAT’S NOT A REQUISITE. IT’S ABOUT HAVING SCARY STORIES CONSTANTLY. BECAUSE THAT PLAYS TO OUR PSYCHOLOGICAL BIAS
OF IT DOESN’T MATTER IF IT’S INCONSISTENT OR IF ONE DAY THEY CLAIM VACCINE CAUSES AUTISM
AND ANOTHER DAY CLAIMING IT CAUSES AUTOIMMUNE CONDITIONS. IT DOESN’T MATTER. ALL THAT MATTERS IS THERE’S LOTS OF IT. THIS SO CALLED MODEL OF FIRE HOSE OF FALSEHOOD
IS BECAUSE IT’S LIKE TRYING TO STEM A FIRE HOSE, LOADS AND LOADS OF WATER COMING AT YOU
VERY FAST. AND TRYING TO REFUTE IT CAN BE INCREDIBLY
DIFFICULT BECAUSE WHEN OUR HANDS ARE TIED BY HAVING TO BE COMMITTED TO SCIENCE AND FACT,
AND MEDICINE, PEOPLE WHO ARE PERPETUATING FALSE HOODS HAVE NO SUCH COMPUNCTION. THAT’S SOME OF THE ISSUE HERE. WE HAVE SEEN THAT IN RECENT ANALYSIS IN “SCIENCE”
IN 2018, WHEN YOU LOOK AT NEWS STORIES AND POPULAR SOCIAL MEDIA STORIES, 126,000 OF THEM,
OVER SEVERAL YEARS, AND FOUND FALSEHOOD PERPETUATED MUCH FURTHER AND MUCH FASTER THAN FACTS. AND WE SEE THIS IN POLITICS TO MEDICINE. VACCINATION IS PERHAPS THE MOST STARK EXAMPLE
OF THE PERILS OF DISINFORMATION. THERE’S SOMETHING ELSE TO CONSIDER, SLIDE
8 PLEASE. THAT I THINK IT’S REALLY IMPORTANT TO MAKE
THIS STATEMENT BEFORE WE CONTINUE ON. WE HAVE TO REALIZE THAT VACCINE HESITANCY
IS A SPECTRUM. IT’S NOT SIMPLY ANTI VAX AND PRO VAX. A LOT OF PEOPLE DWELL IN BETWEEN, NOT SURE,
DON’T KNOW THE DRAWBACKS OF VACCINATION. WHAT YOU TEND TO GET IS A VERY ACTIVE SMALL
BUT VOCAL COHORT OF ANTI VACCINE ACTIVISTS, THE PEOPLE WHO DO PERPETUATE FALSE HOODS,
DON’T CARE IF THEY ARE LYING OR NOT BUT TEND TO SCARE PEOPLE IN THE MIDDLE WHO DON’T HAVE
STRONG OPINIONS EITHER WAY. IF YOU’RE A NEW PARENT, FOR EXAMPLE, AND THERE’S
SOMEONE AGGRESSIVELY TARGETING YOU WITH CARE STORIES ABOUT A VACCINE, IT’S NOT UNSURPRISING
THAT YOU BECOME HESITANT. YOU BECOME A BIT AFRAID BECAUSE, AGAIN, WE’RE
SOCIAL ANIMALS, STORIES MATTER. THE PARENTS I FEEL WHO ARE RENDERED HESITANT
BY ANTI VACCINE ACTIVISTS I WOULD VIEW AS VICTIMS THEMSELVES OF DISINFORMATION. IT’S ALSO IMPORTANT TO ASK WHAT ARE MOTIVATIONS
FOR PEOPLE BEING ANTI VACCINE? THERE’S BEEN PSYCHOLOGICAL RESEARCH DONE IN
THIS. THERE’S A DIFFERENT FACTORS PUT FORWARD, RELIANCE
ON ANECDOTE OVER DATA, LOW CAUSE OF COMPLEXITY, RELIANCE ON CONSPIRATORILY THINKING. ONE OF THE BIGGEST FACTORS PUSHING THE EXTREME
PROPAGATORS IS NARCISSISM. THEY MAY KNOW NOTHING BUT YOU CAN PUT THEM
IN A ROOM WITH IMMUNOLOGIST, PEDIATRICIAN OR SCIENTIST, THEY CAN FEEL LIKE THEY KNOW
A LOT. THAT’S A VERY ALLURING IDEA. PARTICULARLY AS PEOPLE WHO FEEL THEY ARE LOW
POWER FOR WHATEVER OTHER REASON. WHATEVER THE MOTIVATION, WE KNOW IT DOES EXTREME
DAMAGE, ANTI VACCINE SENTIMENT PUSHES HESITANCY, AND REDUCES VACCINATION RATES. WE’RE SEEING A DARK RENAISSANCE TOWARDS VIRTUALLY
CONQUERED DISEASES, MEASLES ON A SHOCKING LEVEL. I’D LIKE TO TALK ABOUT THE HPV VACCINE, SLIDE
9 PLEASE. I’M SURE THE AUDIENCE KNOW THIS, A QUICK RECAP,
THE HUMAN PAPILLOMAVIRUS, THE LAST SPEAKER WAS TALKING ABOUT IT A LITTLE BIT. HPV IS A COMMON VIRUS. IN FACT, IT’S A FAMILY OF OVER 179 VIRUSES,
MOST OF US IN OUR LIFETIME WILL HAVE AT LEAST ONE STRAIN, PROBABLY SEVERAL. ESTIMATE IS AROUND 80% OF US HAVE AN INFECTION
IN A LIFETIME. OTHER ESTIMATES PUT IT MUCH HIGHER. SPREAD VERY EASILY BY SKIN TO SKIN CONTACT. SOME FORMS OF HPV ARE ONCOGENIC, CANCER RESEARCHER
THIS INTERESTS ME. ONCOGENIC STRAIN ARE 16 AND 18, RESPONSIBLE
BETWEEN THEM FOR VAST MAJORITY OF CERVICAL CANCERS. WHEN MOST PEOPLE GET A HUMAN PAPILLOMAVIRUS
INFECTION, THEIR IMMUNE SYSTEM WILL CLEAR IT IN A YEAR OR TWO, THEY WON’T BE AWARE THEY
ARE AFFECTED. FOR A SMALL COHORT, IT WON’T CLEAR, INFECTION
WILL BECOME ENDEMIC, AND CELLS DAMAGED BY THIS WILL MUTATE AND PERPETUATE OUT OF CONTROL
WHICH CAN EVENTUALLY LEAD TO CANCER. YOU CAN SEE FROM THE BOTTOM GRAPHIC THERE
HOW MANY CANCERS ARE ATTRIBUTABLE TO HPV INFECTION, NOT JUST CERVICAL, ANAL, PENILE, HEAD AND
NECK CANCERS. ABOUT 270,000 WOMEN WORLDWIDE DIED FROM CERVICAL
CANCER IN THE YEAR 2012 ALONE. OKAY? NOW, THE OTHER TYPES ARE 6 AND 11 WHICH CAUSE
GENITAL WARTS, NOT ONCOGENIC BUT UNPLEASANT. WE’VE HAD HPV VACCINE FOR A DECADE, PREVENTS
INFECTION WITH ONCOGENIC STRAINS, PARTICULARLY 16 AND 18 AND NOW 33 AND SO ON.
AND IT’S BEEN AN EXTRAORDINARY SUCCESS. I HAVE A GRAPH OF GENITAL WARTS IN AUSTRALIA,
AUSTRALIA INVENTED UNIVERSITY OF QUEENSLAND, ONE OF THE FIRST TO BRING IN A FULL PROGRAM,
SET TO ELIMINATE CERVICAL CANCER BY THE YEAR 2028. INCIDENCES OF GENITAL WARTS IN INFECTED YOUNG
PEOPLE, YOUNG PEOPLE, HAVE PLUMMETED SINCE THE INTRODUCTION OF THE VACCINE. FOR OTHER REASONS YOU’LL SEE IN A FEW MINUTES
I HAVE THE IRISH FIGURES, WE ESTIMATE 420 CANCERS A YEAR IN IRELAND, A SMALL COUNTRY
OF 4 MILLION PEOPLE, CAUSED BY HPV INFECTION, 103 DEATHS, YOU SEE A TINY FRACTION OF HEALTH
BODIES WHO ENDORSE, W.H.O., CDC IN THE STATES, CANCER RESEARCH U.K. IN THE U.K., HSC IN IRELAND,
IRISH CANCER SOCIETY, I COULD NAME SEVERAL MORE. THIS IS NOT SCIENTIFICALLY CONTROVERSIAL. HOWEVER, IF WE’RE GOING TO SLIDE 11 PLEASE,
IF YOU WENT ON LINE YOU MIGHT ENCOUNTER SHOCKING STORIES LIKE THIS. I DON’T WANT TO GIVE THEM THE AIR OF PUBLISHTY
OR VENEER OF PUBLICITY, CLAIMS IT’S CAUSING IMMUNE FAILURE, KILLING PEOPLE, A DANGEROUS
VACCINE, A COVER UP, THERE’S A CONSPIRACY, IT’S CAUSING PROBLEMS, BEING COVERED BY THE
GOVERNMENT, A NEBULOUS CONCEPT, OR BIG PHARMA, NOT SPECIFIC BUT VAGUE. THESE CONSPIRACY THEORIES HAVE SERIOUS IMPACT. LET’S MOVE TO SLIDE 12, AND LOOK AT THE WORLD
IMPACT STARTING IN JAPAN. IN 2013, DISINFORMATION ABOUT THE VACCINE
LED TO A CONFIDENCE CRISIS IN JAPAN. YOU CAN SEE FROM THE TOP GRAPHIC THERE, THE
UPTAKE IN 2013 OF THE HPV VACCINE WAS 70%. AFTER A YEAR ARE SCARE MONGERING THAT GOT
MASSIVE MEDIA TRACTION COVERAGE DROPPED TO LESS THAN 1%. TO THIS DAY, IT STILL HASN’T RECOVERED. A PAPER IN THE “LANCET” LAST WEEK ESTIMATES
THAT JAPAN’S POLITICAL FAILURE AS MUCH AS ANYTHING ELSE ABOUT THE HPV VACCINE WILL LEAD
TO 11,000 PREVENTIBLE CANCER DEATHS. IF NOTHING IS DONE. AT THIS STAGE THAT’S PROBABLY VERY DIFFICULT
TO REVERSE BECAUSE AT THE MOMENT THEY HAVE NOT RECOVERED THEIR VACCINATION RATE WHICH
IS QUITE WORRYING. I’LL MOVE TO SLIDE 13 PLEASE. A YEAR LATER, THE SAME PROBLEM EMERGED IN
DENMARK. SO IN 2014, A DOCUMENTARY ABOUT HPV VACCINE
DAMAGE AIRED ON DANISH TELEVISION. NOW, THE DOCUMENTARY ITSELF WAS INCREDIBLY
NAIVE, HAD ITS OWN ISSUES, WAS ESSENTIALLY FICTITIOUS. A LOT OF PEOPLE CLAIMED THEY HAD BEEN DAMAGED
BY THE VACCINE, WHEN THIS WAS INVESTIGATED WAS NOT SUBSTANTIATED. HOWEVER, IT GOT MAINSTREAM COVERAGE SIMILAR
TO JAPAN. WITHIN ROUGHLY A YEAR, THEIR VACCINATION RATES
HAD GONE FROM 79% UPTAKE TO 17%. YOU CAN SEE THE TOP RIGHT HAND CORNER, THE
RED LINE IS NORDIC COUNTRIES AND VACCINE UPTAKE, RED LINE ON THE GRAPH IS HOW DENMARK PLUMMETED. IT’S SHOCKING IF YOU LOOK AT THAT FIGURE. NONE OF THESE CLAIMS HAD VERACITY. THEY WERE FICTIONS BUT DID ENOUGH DAMAGE. SLIDE 14 PLEASE. IN 2015, A SIMILAR PANIC CAME TO IRELAND. IT STARTED ORGANICALLY WITH LOCAL PRESSURE
GROUPS WHO HAD A LONG ESTABLISHED ANTI VACCINE HISTORY, MAKING CLAIMS ABOUT THE VACCINE. THE PROBLEM WAS A DOCUMENTARY SIMILAR TO THE
DANISH INDICATION UNCRITICAL DOCUMENTARY AIRED IN 2015 ON IRISH TELEVISION, ENOUGH TO CREATE
NATIONAL DISCUSSION AND PANIC. DESPITE THE FACT MEDICAL AND SCIENTIFIC COMMUNITY
WERE TRYING TO ADDRESS THESE CONCERNS, UNCRITICAL MEDIA COVERAGE ALLOWED IT TO PERPETUATE. IN A YEAR WE FELL FROM 87% UPTAKE TO 50%. UNLIKE OTHER COUNTRIES AFFECTED, SOMETHING
DIFFERENT OCCURRED IN IRELAND. WE’LL MOVE TO SLIDE 15 PLEASE. IN IRELAND THERE WAS A RAPID RESPONSE TO HPV
VACCINATION CRISIS. SO ALLIANCE FORMED OF MEDICAL PROFESSIONALS,
PARENTS, PARENTAL ORGANIZATIONS, SCIENTISTS AND GOVERNMENT MINISTERS WHO CAME FORWARD
TO SAY THIS VACCINE PREVENTS CANCERS. IT CAN PREVENT 5% OF ALL CANCERS WORLDWIDE. THEY ARE THE FACTS. WE ALSO IN TANDEM, FACTUAL INFORMATION WAS
DISSEMINATED, GREAT INITIATIVE IN MAKING SURE THEY WERE READY TO COMBAT THIS. MULTIPLE RESPECTED ORGANIZATIONS JOINED THE
INITIATIVE. BY 2017 IRELAND WAS STARTING TO SEE RECOVERY,
SOMETHING NOT HAPPENING IN DENMARK OR JAPAN. BUT THE MOST EFFECTIVE COMPONENT WAS A PERSONAL
STORY, A VITAL ONE. I’D LIKE TO MOVE TO SLIDE 16 PLEASE. THIS WOMAN HERE IS LAURA BRENNAN, A WOMAN
IN IRELAND WHO AT THE AGE OF 25 RECEIVED TERMINAL CERVICAL CANCER DIAGNOSIS. AND AS SHE BECAME MORE INTERESTED, SHE FOUND
OUT THERE WAS A VACCINE THAT COULD HAVE PREVENTED THE CANCER THAT SHE HAD. THE CANCER THAT WAS TO CLAIM HER LIFE. AND SHE DID SOMETHING EXTRAORDINARY. SHE CONTACTED THE HEALTH SERVICE EXECUTIVE
AND SAID, I WOULD LIKE TO VOLUNTEER WHATEVER I CAN TO COMBAT THIS. SO PEOPLE GET VACCINATED. AND HER CONTRIBUTION WAS EXTRAORDINARY. SHE WAS ABLE TO GIVE HER PERSONAL ACCOUNT. IN DOING SO, SHE REFRAMED THE NARRATIVE. SUDDENLY SHE WAS TELLING PEOPLE, I AM THE
REALITY OF AN UNVACCINATED GIRL. NO LONGER WERE PEOPLE CONCENTRATING ON PHANTOM
SIDE EFFECTS BUT SEEING WHAT THE VACCINE PREVENTED. THE AGONY AND TRAGEDY THAT COULD BE AVOIDED
FROM ALL THIS. IT WAS A SELFLESS ACT. NEXT SLIDE, SLIDE 17, I’D LIKE TO PLAY A VIDEO
IF IT WORKS. THIS IS LAURA IN TANDEM WITH W.H.O. DOING AWARENESS VIDEO RELEASED IN FEBRUARY
LAST YEAR. I’M NOT SURE IF THIS WILL WORK. DO YOU WANT TO TRY AND PLAY IT FROM THERE?>>MY NAME IS LAURA. I WAS DIAGNOSED WITH CERVICAL CANCER 2D IN
DECEMBER 2016. NO LONGER CURABLE UNFORTUNATELY. I WAKE UP EVERY MORNING, I PUT ON MY MAKEUP
AN BIG, NOT TRYING TO HIDE I HAVE CANCER. I LOOK BACK IN THE MIRROR, THAT PERSON IS
ME, THE PERSON I WAS BEFORE I WAS DIAGNOSED WITH CANCER. I WAS A SALES MANAGER AT THE TIME. I COVERED HALF OF IRELAND. IF I HAVE THE VACCINE I WOULDN’T BE IN THIS
TODAY BECAUSE THE VACCINE PROTECTS AGAINST HPV 16 AND HPV 16 CAUSED MY CANCER.>>I HAD GIVEN THEM ALL THE VACCINES, NEVER
HEARD OF THE HPV VACCINE. IF I HAD COME INTO THE SCHOOLS WHEN LAURA
WAS IN SECONDARY SCHOOLS.>>WE WOULD LOVE TO HAVE THE VACCINE, LOVE
TO HAVE GIVEN IT TO LAURA.>>I WAS ORIGINALLY DIAGNOSED WITH CANCER,
I REMEMBER SITTING DOWN WITH MY MOTHER, SHE SAID, I WISH THIS HAD HAPPENED TO ME AND NOT
YOU. SHE COULDN’T PREVENT IT FROM HAPPENING TO
ME. THAT’S WHAT HURT HER SO MUCH.>>PREVENTION IS BETTER THAN CURE. PREVENTION DEFINITELY IS BETTER THAN NO CURE. UNFORTUNATELY, IN OUR CASE, THERE ISN’T A
CURE.>>I GO FOR TREATMENT EVERY THREE WEEKS. THAT’S HOPEFULLY GOING TO KEEP MY CANCER AS
SMALL AS POSSIBLE FOR AS LONG AS POSSIBLE. I’M SO LUCKY TO HAVE SUCH A FANTASTIC MEDICAL
TEAM. WHEN I GOT MY DIAGNOSIS, I DECIDED THAT I
WOULD DO ANYTHING TO STOP THIS FROM HAPPENING TO ANYONE ELSE. SOMETIMES WHEN YOU HEAR ABOUT CERVICAL CANCER,
YOU DON’T THINK THAT COULD BE MY DAUGHTER, OR MY FRIEND. I’M JUST YOUR AVERAGE 25 YEAR OLD GIRL, IT
DID HAPPEN TO ME. SO WHAT I WANT TO SAY TO PARENTS IS MAKE SURE
YOU’RE GETTING YOUR INFORMATION FROM REPUTABLE SOURCES. IT’S VERY IMPORTANT TO MAKE SURE THAT THE
WEBSITES ARE REPUTABLE AND SPEAK TO MEDICAL PROFESSIONALS IF THEY HAVE ANY QUERIES.>>ALL OF THE INFORMATION THAT WE HAVE SAY
THE VACCINE IS SAFE AND PREVENTS A DIFFICULT TO TREAT FORM OF CANCER. PLEASE LISTEN TO LAURA’S STORY, GET THE FACTS,
GET THE VACCINE.>>I LIVE MY LIFE DAY BY DAY. I NEVER WANT TO BE LOOKING AT A SICK GIRL
IN THE MIRROR BECAUSE THAT ISN’T ME IN THE INSIDE. I’M NOT GOING TO LET CANCER CHANGE THAT. AS LONG AS I’M LUCKY TO BE HERE, I WILL CONTINUE
TO SHARE THE MESSAGE, TO ANYONE THAT WILL LISTEN. THE HPV VACCINE IS SAFE AND EFFECTIVE. IT IS THE BEST WE HAVE TO PREVENT THIS CANCER
FROM HAPPENING.>>SO I’D LIKE TO END, THAT SEEMED TO HAVE
WORKED. I’D LIKE TO MOVE TO SLIDE 18 PLEASE, THE NEXT
ONE. I WAS INCREDIBLY HONORED AND PRIVILEGED TO
CALL LAURA A CLOSE FRIEND. A MONTH AFTER THAT VIDEO AIRED, THE W.H.O. LAST YEAR, LAURA PASSED AWAY AGED ONLY 26. AFTER THAT THERE WAS A HUGE OUTPOURING OF
PUBLIC GRIEF. BUT IT LAID BARE THE AGONY AND TRAGEDY THE
VACCINE CAN PREVENT, LED TO A SURGE IN VACCINATION. UNLIKE THE OTHER COUNTRIES AFFECTED BY THESE
CONFIDENCE CRISES, IRELAND HAS SHOWN RECOVERY. WE’RE WELCOME BACK INTO THE HIGH 70s, JAPAN
FLOUNDERS AT LESS THAN 1%. I WAS LUCKY TO HEAR HER WORDS. SHE SAID THE VACCINE SAVES LIVES. IT COULD HAVE SAVED MINE. I THINK THIS IS REALLY IMPORTANT, MOVE TO
SLIDE 19, LAST SLIDE PLEASE. THIS IS SOMETHING I WROTE ABOUT RECENTLY. I TALKED A LOT ABOUT LAURA’S LEGACY. I THINK A QUOTE THAT CAME UP WAS THIS, CHANGING
MINDS IS VITAL, HEARTS MATTER EVERY BIT AS MUCH. WE ARE NOT INTELLECTUAL AUTOMATONS BUT EMOTIONAL
CREATURES WHO FEEL FIRST AND THINK LATER. ALL THE FACTS AND ARGUMENTS AND LOGIC IN THE
WORLD ARE FOR NOTHING IF WE CANNOT CONNECT ON AN EMOTIONAL LEVEL. HER STORY SAVED MORE LIVES THAN JOURNAL ARTICLES
COULD. THAT’S TRUTH. BY MELDING LAURA’S STORY WITH FACT, SHE FRAMED
THE NARRATIVE A DIFFERENT WAY. IT SHOWCASED THE VERY REAL TRAGEDY VACCINATION
COULD PREVENT. AND THIS IS CRUCIAL. ALL THE FACTS IN THE WORLD ARE IRRELEVANT
IF WE CAN’T SHOW PEOPLE WHY SOMETHING MATTERS. PERSONAL STORIES ARE CENTRAL TO DOING THIS. WE HAVE TO SHOW WITH HUMAN REFERENCE WHY VACCINATION
MATTERS, WHY WE CARE SO MUCH ABOUT IT. AND THIS IS A REAL VITAL COMPONENT OF COMBATING
THE FICTIONS SO COMMON ABOUT VACCINATION. WE HAVE TO REMIND THE PUBLIC WHY IT MATTERS
SO MUCH AND CONSEQUENCES OF US BECOMING COMPLACENT. I’VE PROBABLY GONE FAR OVER TIME. WE’LL LEAVE FOR NOW AND TAKE QUESTIONS, IF
THAT HELPS.>>THANK YOU, DR. GRIMES. WE’RE GOING TO HOLD QUESTIONS TILL THE END
OF THE PANEL AND CALL MISS TAMIKA FELDER TO THE STAGE, OR TO THE PODIUM.>>HELLO. THANK YOU ALL FOR HAVING ME HERE TODAY. I’M TAMIKA FELDER, AND I KNEW LAURA PERSONALLY. AND SHE WAS AN INCREDIBLE YOUNG WOMAN. AND HER LEGACY WILL SURELY LIVE ON, AND AS
WE’VE SAID ALL ACROSS THE WORLD, THANK YOU, LAURA. SO I JUST WANTED TO SAY THAT AFTER SEEING
HER AND JUST MISSING HER, BEING A PART OF THIS, BUT SHE STILL IS BECAUSE THANKFULLY
WE HAVE CAPTURED HER STORY IN VIDEO AND BLOG POSTS AND OTHER PLACES. I WANT TO TALK ABOUT THE POWER OF PATIENT
STORIES LIKE LAURA’S, FOR ME, I WAS DIAGNOSED AT THE AGE OF 25. A YOUNG GIRL GROWING UP THINKING WHAT I WANTED
TO DO WITH MY LIFE, HOW I WANTED TO LIVE, CERVICAL CANCER WAS NOT ONE OF THE THINGS
THAT I WROTE IN MY DIARY AS A YOUNG GIRL. I WAS HERE IN WASHINGTON, D.C. WORKING AS
A TELEVISION PRODUCER, AND LITERALLY LIVING OUT ALL OF MY HOPES, WISHES AND DREAMS, AND
LIFE WAS REALLY GOOD. WHAT I WASN’T DOING BECAUSE I WAS A FREELANCE
JOURNALIST WAS I WASN’T GETTING SCREENED FOR CERVICAL CANCER. AT 25, IT WASN’T SOMETHING THAT I THOUGHT
ABOUT. IT WASN’T SOMETHING THAT I WORRIED ABOUT. IT WASN’T SOMETHING THAT I THOUGHT MAYBE THIS
SHOULD BE SOMETHING THAT I WAS DOING. I WAS LIVING MY LIFE. AND THINGS WERE WONDERFUL UNTIL THEY WEREN’T.
SO IN 2001, I WENT IN FOR ROUTINE SCREENING AFTER GETTING A NEW JOB THAT OFFERED HEALTH
BENEFITS. AND UNFORTUNATELY I WAS DIAGNOSED WITH CERVICAL
CANCER. TO DATE IT’S ONE OF THE HARDEST THINGS I’VE
EVER DEALT WITH IN MY LIFE. FORTUNATELY FOR ME I STILL HAVE MY LIFE BUT
I DEAL WITH THE SECONDARY EFFECTS OF A CANCER DIAGNOSIS. I LOST MY FERTILITY. SO I AM UNABLE TO CARRY A CHILD, WHICH BRINGS
ON EMOTIONAL PAIN THAT EVEN OVER A DECADE LATER IS STILL VERY HARD FOR ME. WHEN I WAS DIAGNOSED, I DID NOT THINK THAT
I WOULD GO INTO THIS BECOMING A CANCER ADVOCATE. SO THOSE IN THE ROOM WHO KNOW MY STORY AND
THE WORK I DO, IT’S IRONIC BECAUSE I TALK ABOUT THIS CONSTANTLY. AGAIN, IT WAS NOT ONE OF THE THINGS THAT I
THOUGHT GROWING UP I WOULD DO. BUT WHAT I LEARNED ALONG THE WAY IS THAT MAKING
MY SURVIVORSHIP COUNT IS HOW I LIVE MY LIFE BEYOND CANCER, BECAUSE AS I SURVIVED, WHAT
I REALIZED WAS THAT EVERY DAY THE CANCER STILL HAD HOLD OF MY LIFE, WHEN YOU ARE IF YOU’RE
FORTUNATE ENOUGH TO HEAR THOSE WORDS, NO EVIDENCE OF DISEASE, WE WHO HAVE EXPERIENCED CANCER
FIRST HAND HAVE TAKEN CARE OF A CAREGIVER, WE KNOW THAT IT DOESN’T END AT TREATMENT. THERE IS YOU KNOW, I LIKEN IT TO IF YOU’RE
INTO PUZZLES, YOU PUT PUZZLES TOGETHER, THE PIECES GET WORN, THEY DON’T FIT THE SAME WAY
AGAIN. OR AS ONE OF MY SURVIVOR SISTERS ELOQUENTLY
SAID, THAT SHE WAS LIKE A SNOW GLOBE THAT’S SHAKEN, SHAKEN, SHAKEN, SHAKEN, AND AS SOON
AS THE SNOW FALLS AGAIN IT’S SHAKEN UP AGAIN. THAT’S WHAT LIFE BEYOND CANCER CAN BE LIKE. AND FOR ME, STARTING TO SHARE MY STORY, HOW
I HEALED MYSELF, BECAUSE LEARNING THAT CERVICAL CANCER IS LINKED TO THE HUMAN PAPILLOMAVIRUS
COMES WITH A DARK CLOUD. I REMEMBER THINKING, WHY WOULD ANYONE WANT
TO TALK ABOUT THIS CANCER? AND AS A TELEVISION PRODUCER, RESEARCH IS
A BIG PART OF WHAT I DO. AND THE MORE THAT I LEARNED ABOUT CERVICAL
CANCER, I LEARNED THAT, YOU KNOW, THERE WAS AN HPV VACCINE BEING FDA APPROVED AFTER MY
DIAGNOSIS IN 2001. A VACCINE WAS COMING, I KNEW WE HAD TO BE
PART OF THAT IN SOME WAY. SO THE BIGGEST PART OF THE WAY THAT I MAKE
MY SURVIVORSHIP COUNT IS BY THE ORGANIZATION THAT I RUN, CERVIVOR, WHERE WE HELP NOT ONLY
CERVICAL CANCER PATIENTS BUT ANYONE WHO WANTS TO HELP US IN CERVICAL CANCER BECAUSE UNLIKE
OTHER CANCERS, WE KNOW THAT WE CAN. THESE ARE SOME OF THE WOMEN WHO ARE PART OF
OUR ORGANIZATION. WHEN I STARTED SHARING THIS I THOUGHT, I CREATE
A WEBSITE, AGAIN YOU HAVE TO THINK IN 2003 WE DIDN’T HAVE FACEBOOK. WE KNOW THAT THE HPV VACCINE IS OLDER THAN
NOT ONLY THE iPHONE BUT FACEBOOK AND ALL THESE OTHER THINGS. AND I LIKE TO SHARE THAT, WHEN PEOPLE SAY
IT HASN’T BEEN AROUND LONG ENOUGH OR THIS HASN’T HAPPENED. BUT WHEN I STARTED SHARING MY STORY I THOUGHT
YOU BUILD IT, THEY WILL COME. AND NO ONE WANTED TO TALK ABOUT IT. NO ONE WANTED TO BE THE FACE OF CERVICAL CANCER. AND WHEN WE STARTED SHARING THE STORIES, WE
STARTED WITH SIX STORIES THAT INCLUDED MINE. AS TIME WENT ON, MORE AND MORE PEOPLE CAME,
THEY WANTED TO SHARE THEIR STORY BEHIND THE SCENES BUT NOT PUBLICLY BE THE FACE. WE STARTED HOLDING SURVIVOR SCHOOLS, EDUCATIONAL,
WHICH ARE PART EDUCATIONAL RETREAT, PART ADVOCACY TRAINING, AND SLOWLY BUT SURELY THESE WOMEN
STARTED JOINING AND THEY REALLY UNDERSTOOD WHAT IT MEANT TO BE INFORMED, EMPOWERED, ALIVE,
ALSO UNDERSTANDING THAT UNLIKE OTHER CANCERS WHERE WE’RE STILL TRYING TO WIN THE WAR ON
CANCER WHICH IS INCREDIBLY IMPORTANT, WITH CERVICAL CANCER AND NOW THESE OTHER HPV RELATED
CANCERS WE CAN DO SOMETHING RIGHT NOW. AS WE STARTED DOING THAT, AND PEOPLE STARTED
SEEING PEOPLE LIKE LAURA, MYSELF, MICHELLE WHITTLOCK AND MANY OTHER WOMEN SHARE STORIES,
THEY WANT TO SHARE STORIES TOO. THAT’S WHERE THE WEBSITE, WE HAVE OVER 100
WOMEN WHO HAVE UPLOADED THEIR STORIES, AND IF YOU THINK ABOUT CANCER IN GENERAL YOU MAY
THINK A HUNDRED DOESN’T SEEM LIKE A LOT. BUT FOR A CANCER LIKE CERVICAL CANCER, IT
IS A LOT. WE SHARE OUR STORIES, WE SHARE OUR FACE, WE
SHARE WHAT STATE OUR COUNTRY WE’RE FROM. WE SHARE HOW CANCER IMPACTED US, AND WHAT
IT’S DONE TO US BECAUSE ONE OF THE THINGS THAT WE HEARD A LOT WAS, WELL, CERVICAL CANCER
IS AN EASY CANCER. I KNOW WORKING HERE WHEN I WAS COVERING A
STORY AND THE HPV VACCINE HAD JUST COME OUT, THERE WAS A LEGISLATOR WHO WAS VERY ANTI HPV
VACCINE BECAUSE A LOT OF FAKE NEWS AND OTHER THINGS THAT WE HEAR, THE MISINFORMATION THAT’S
OUT THERE. AND SHE SAID TO ME, SHE SAID, WELL, YOU SEEM
LIKE YOU’RE DOING FINE SINCE YOUR CANCER DIAGNOSIS. AND IT OCCURRED TO ME THEN, WHAT IT DID WAS
LIGHT A FIRE IN ME. SHE SAID, WE CAN WAIT TILL YOUNG WOMEN, BECAUSE
AT THE TIME THE HPV VACCINE WAS ONLY APPROVED FOR WOMEN, WE CAN WAIT TILL WOMEN ARE OLD
ENOUGH AND MAKE A DECISION. I REALIZED, SHE DIDN’T GET IT. HERE I AM, NOT A DOCTOR, NOT A MEDICAL PERSON. BUT I KNEW IT WASN’T ABOUT DIAGNOSING THE
CANCER, LETTING THE CANCER RUN ITS COURSE, AND IF YOU’RE LUCKY YOU ONLY LOSE YOUR FERTILITY. BUT IT WAS ABOUT PREVENTING IT. THAT’S WHAT I WANTED TO BE A PART OF. SO AT CERVIVOR WE WANT TO BE A PART OF PREVENTING
CERVICAL CANCER. PREVENTING HPV CANCERS. BECAUSE WE KNOW WE CAN. WE KNOW THAT WE HAVE AN INCREDIBLE OPPORTUNITY
TO WORK ASIDE MANY OF YOU WHO ARE HERE TODAY WHO ARE LISTENING AND WATCHING ONLINE, YOU’VE
DONE INCREDIBLE WORK. BUT WE’RE THE ONES THAT MAKE IT REAL. I HAD A WOMAN JUST THIS WEEK WHO I THOUGHT
SHE WAS READY TO SHARE HER STORY. AND I WAS GOING TO SHARE IT THIS WEEK. SHE TOLD ME, I’M NOT READY YET. I RESPECT THAT BECAUSE THE SHAME IS REAL. THE ANTI VAXERS WHO COME AFTER US ARE REAL. BUT I AM PROUD OF EVERY SINGLE WOMAN AND MAN
WHO SHARES THEIR HPV STORIES BECAUSE WE’RE DOING OUR PART TO HELP YOU. WE KNOW THE RESEARCH IS THERE. WE KNOW WE CAN MAKE A DIFFERENCE. THESE ARE THREE SURVIVORS. THERE’S BECKY, WHO IS THE ONE WITH NO HAIR. THERE IS CAROL, WHO IS IN THE MIDDLE, A DOUBLE
OSTOMY. THERE IS ANNA, ON THE END, WHO DEALS WITH
MASSIVE EFFECTS OF RADIATION DAMAGE. THEY ARE ALL SMILING BECAUSE WE’RE ALL STILL
HERE. BUT BECKY’S CANCER HAS BEEN DEEMED INCURABLE. SHE’S CURRENTLY FIGHTING AS HARD AS SHE CAN. SHE HOSTED THIS EVENT LAST SUNDAY. THIS WAS AT HER HOUSE. SO ONE OF THE MESSAGES SHE RECEIVED ONCE HOSTING
IT WAS FROM A MOM WHO SAID THANK YOU SO MUCH FOR INVITING ME. I HAVE BEEN VERY WORRIED ABOUT THAT SHOT FOR
A COUPLE YEARS NOW. AFTER HEARING YOUR STORIES, THREE STORIES
OF THE WOMEN FEATURED THERE, I AM DEFINITELY GETTING IT FOR RILEY. YOU’RE SO BRAVE, ALWAYS IN MY PRAYERS. SHE RECEIVED ANOTHER MESSAGE AFTER THAT FROM
A WOMAN WHO HADN’T BEEN SCREENED FOR CERVICAL CANCER AND I FORGET HOW MANY YEARS, BUT SHE
SENT BECKY A SCREEN SHOT OF HER AND HER OB/GYN’S OFFICE. IN HER PAPER GOWN GETTING HER EXAM. WHAT WE KNOW IS STORIES ARE POWERFUL. WHEN IT SEEMS LIKE WE’RE ONLY PUSHING THE
NEEDLE, THINGS LIKE THIS COME ALONG AND REMIND US TO KEEP GOING BECAUSE THIS IS HARD WORK. ESPECIALLY FOR US BEING PATIENTS, WHO LOSE
OUR COMRADES EVERY SINGLE DAY. AS A TELEVISION PRODUCER EVERYTHING I DO IN
CERVIVOR IS DOCUMENTED, TO THE CHAGRIN OF THE WOMEN. THEY KNOW I’M GOING TO HAVE A MICROPHONE OR
CAMERA OR PHOTOGRAPHER IN THEIR FACE. WE WANT TO MAKE IT KNOWN YOU CAN’T NECESSARILY
SEE EFFECTS CERVICAL CANCER WHEN I WALK BY BUT IT’S REAL. CERVICAL CANCER IS A DIFFICULT DISEASE THAT
IS NOT ONLY PHYSICALLY HARD BUT EMOTIONALLY AND SPIRITUALLY. IN 2017 WE HELD SURVIVOR SCHOOL IN DELRAY
BEACH, FLORIDA, I MET A YOUNG WOMAN, LISA, TERMINAL WHEN SHE CAME, NORMALLY SURVIVOR
SCHOOL IS NOT FOR TERMINAL WOMEN BUT WHAT WE LEARNED, HOW LAURA BRENNAN FROM IRELAND
GOT TO SURVIVOR SCHOOL IN 2016, THAT EVEN THOUGH THEY ARE TERMINAL, THEY MATTER. THEIR STORIES MATTER. WHAT LISA SAID TO ME UPON LEAVING SCHOOL WHEN
SHE COULDN’T MAKE IT HOME BECAUSE CANCER WAS RAVAGING HER BODY, SHE WANTED PEOPLE TO KNOW
WHAT CERVICAL CANCER HAS DONE TO ME, I WANT PEOPLE TO KNOW WHY THEY SHOULD GET AN HPV
SHOT FOR THEM OR THEIR CHILDREN.>>I’M 30 YEARS OLD. I LIVE IN SOUTH BEND, INDIANA. I WAS DIAGNOSED WITH STAGE 1B 1 ADENOCARCINOMA
OF THE CERVIX AT 26. TUBES ARE NOT FUN. SIDE EFFECTS ARE NOT FUN. IF SOMETHING LIKE THIS IS PREVENTIBLE I DON’T
UNDERSTAND WHY PEOPLE DON’T WANT TO PREVENT IT. IF THERE’S A LEUKEMIA VACCINE OR BREAST CANCER,
OR PROSTATE CANCER OR ANYTHING NOT RELATED TO SEX, THERE’S REALLY NO QUESTION. CANCER SUCKS. IT TAKES AND TAKES AND TAKES. AND MAJORITY OF THE TIME, IT TAKES EVERYTHING
AND KILLS YOU. IF I CAN HELP SOMEBODY ELSE NOT GO THROUGH
THIS, THAT’S PROBABLY THE BEST THING I CAN OFFER AT THIS POINTS.>>SADLY LISA LOST HER FIGHT WITH CERVICAL
CANCER BUT HER STORY HAS BEEN SEEN AROUND THE WORLD. I’M ALWAYS HAPPY TO SEND HER PARENTS AN E
MAIL AND LET THEM KNOW EVERY COUNTRY, EVERY PLACE HER STORY HAS BEEN SHARED. OOPS. THESE ARE A FEW OF THE WOMEN IN OUR CERVIVOR
COMMUNITY WE LOST, YOU SEE LAURA BRENNAN ON THE END. WE COULD NOT FIT EVERYONE INTO ONE SLIDE. THAT WAS DEEPLY TROUBLING TO ME. I KNOW THAT WE CAN MAKE THIS HAPPEN, DESPITE
THE ANTI VAX MOVEMENT. I KNOW WORKING TOGETHER, THAT WE’RE STRONGER
TOGETHER, AND WE CAN MAKE A DIFFERENCE. WE HAVE TO. I KNOW THAT I COULD HAVE EASILY BEEN THERE. SO FOR ME THAT IS WHY I SHARE MY STORY. THAT IS WHY I CONTINUE TO DO THIS WORK, BECAUSE
IT COULD HAVE BEEN ME. SO I’M A SURVIVOR. AND I WILL CONTINUE TO SHARE MY STORY AND
WORK WITH EACH AND EVERY ONE OF YOU TO MAKE SURE THAT WE END HPV CANCERS. REACH OUT TO ME ANYTIME YOU WANT. THANK YOU FOR ALLOWING ME TO SHARE A LITTLE
BIT OF M CERVIVOR STORY AND SISTERS.>>MISS MAROTTA?>>I’M HERE TO TALK TO YOU TODAY ABOUT ALONG
THE SAME LINES OF WHAT TAMIKA WAS TALKING ABOUT, ADDRESSING VACCINE HESITANCY WITH STORY
TELLING. WE KNOW THAT VACCINE HESITANCY, ANTI VACCINATION
SENTIMENT, IS A PROBLEM. THE WORLD HEALTH ORGANIZATION HAS IDENTIFIED
IT AS ONE OF THE TOP TEN GLOBAL THREATS. SO WHAT CAN WE DO WHEN WE’RE HAVING TO DEAL
WITH THIS TYPE OF THING AND GET PEOPLE THE RIGHT INFORMATION AND ADDRESS THE MISINFORMATION
THAT’S OUT THERE. I’M GOING TO TALK ABOUT THREE MAIN THINGS
TODAY. COMMUNICATION PANELS THAT WE USE AS ORGANIZATION
I’M AFFILIATED WITH, FAMILIES FIGHTING FLU, I WILL GIVE YOU OUR OBSERVATION AT THE ORGANIZATION
ON OUR DOs AND DON’Ts. WHAT HAS WORKED FOR US OVER THE YEARS COMMUNICATING
WITH PEOPLE, ALONG THAT SPECTRUM OF VACCINE HESITANCY, WHAT HASN’T WORKED. AND THEN ALSO SIMILAR TO TAMIKA, HIGHLIGHTING
IMPORTANCE CRITICAL IMPORTANCE OF SHARING PERSONAL STORIES. ONE COMMON THEME I SEEM TO SEE EVERYWHERE,
I’M A SCIENTIST, I LOVE FACTS AND DATA AND STATISTICS AND THEY HAVE A PLACE IN THE CONVERSATION
BUT I THINK CONTINUALLY WHAT IS LACKING IS THAT PRO VACCINATION PATIENT VOICE. SO JUST VERY BRIEFLY FAMILIES FLIGHTING FLU
IS A NON PROFIT ORGANIZATION AROUND FOR 15 YEARS, WE FOCUS ON EDUCATION AND ADVOCACY. A LOT OF FAMILIES HAVE PERSONAL STORIES THAT
SHARE THOSE STORIES WITH US, AND THAT WE WEAVE INTO A LOT OF EDUCATIONAL CAMPAIGNS AND INITIATIVES. THIS IS MY STORY. I JUST WANT TO TAKE A COUPLE MOMENTS AND TELL
YOU ABOUT MY JOSEPH. IN OCTOBER 2009, MY JOSEPH WAS A HEALTHY 5
YEAR OLD BOY. HE WAS ATTENDING KINDERGARTEN. HE WAS FUN. HE WAS LOVING. HE LIKES “STAR WARS” AND TRANSFORMERS. HE LOVED RIDING THE SCHOOL BUS. I’VE NEVER SEEN A KID SO HAPPY TO GET ON A
SCHOOL BUS AND GO TO SCHOOL, BUT HE JUST WAS SO EXCITED EVERY DAY TO GET ON THE SCHOOL
BUS. HIS ILLNESS STARTED INNOCENTLY ENOUGH. HE CAME DOWN WITH FLU. WE DIDN’T KNOW IT WAS FLU IN THE BEGINNING. HE WAS ADMITTED TO THE HOSPITAL, AFTER FALLING
ILL, WE TOOK HIM TO URGENT CARE, THE HOSPITAL DIAGNOSED HIM PNEUMONIA, FINALLY INFLUENZA. I’VE ALWAYS BEEN PRO IMMUNIZATION. I HAVE ALWAYS DONE AS ANY PARENT WOULD THE
VERY BEST THAT I COULD TO PROTECT MY CHILDREN FROM WHAT I THOUGHT THE MAJOR THREATS WERE
TO THEM. SO JOSEPH WAS IN THE HOSPITAL FOR A TOTAL
OF TEN DAYS. THEY WERE TREATING HIM, WHEN WE GOT THE DIAGNOSIS
OF PNEUMONIA WE’RE IN THE HOSPITAL, WE’LL DEAL WITH THIS. WE GOT THE DIAGNOSIS OF FLEW, WE GOT DIAGNOSIS
OF H1N1 DOCTORS SAID IT’S JUST THE FLU. I THOUGHT EVERYTHING WAS UNDER CONTROL. WE WERE IN A CHILDREN’S HOSPITAL DOING YOUR
DUE DILIGENCE, HE WAS UNDER GOOD CARE. MY HUSBAND AND I WERE THERE, TALKING TO THE
NURSES AND DOCTORS. HE WAS RELATIVELY STABLE, HAD BEEN DOWNGRADED
FROM ICU. SEVERAL DAYS INTO HIS HOSPITAL STAY WE WERE
TALKING ABOUT DISCHARGE, FOR ALL INTENTS AND PURPOSES I THOUGHT I WAS LEAVING THAT HOSPITAL
WITH MY SON. DAY 9, HIS BLOOD PRESSURE PLUMMETED. THEY DIDN’T KNOW WHY. WE WENT BACK TO THE ICU. RUNNING ALL KINDS OF TESTS. AND I WILL TELL YOU IN ALL HONESTY, I THOUGHT
EVERYTHING WAS OKAY UNTIL THAT EVENING, THAT WAS THE FIRST TIME IT OCCURRED TO ME, WAIT
A MINUTE, SOMETHING IS NOT ADDING UP, SOMETHING IS WRONG. THEY WERE RUNNING ALL KINDS OF TESTS, EVERYTHING
WAS COMING BACK NORMAL. WE WERE SO COMFORTABLE IN HIS CARE THAT MY
HUSBAND LEFT WITH OUR 7 YEAR OLD DAUGHTER AND TOOK HER HOME AND SAID I’LL BE BACK IN
THE MORNING. ALL NIGHT LONG THEY WERE DOING TESTING, THE
NEXT MORNING THEY CAME TO ME AND SAID BECAUSE HIS RESPIRATION, HEART RATE IS HIGH, WE WANT
TO PUT HIM ON A VENTILATORS TO MAKE HIM COMFORTABLE, NOT A BIG DEAL. I CALMLY TOLD MY HUSBAND TO COME TO THE HOSPITAL. I WAS TALKING TO JOSEPH WHO HAD BEEN AWAKE,
AND RATHER GRUMPY ABOUT ALL THE TESTING ALL NIGHT LONG. WE WERE TALKING ABOUT HALLOWEEN COSTUMES. IT WAS OCTOBER 18. HE CODED, THEY CAME IN, AND THEY WERE WORKING
ON HIM, AND I THINK STILL MY MOMMY BRAIN WAS LIKE, THEY ARE GOING TO FIX THIS. THEY ARE GOING TO MAKE THIS RIGHT. AND I WAS STANDING OUTSIDE HIS ROOM, THEY
BROUGHT ME IN, AND THEY WERE CONTINUING TO WORK ON HIM. I KNEW THINGS WERE SERIOUS. I STEPPED OUT OF THE ROOM. MY HUSBAND COMES IN, IN THE MIDST OF ALL THIS
CHAOS. AND AT ONE POINT THE ATTENDING DOCTOR CAME
OUT AND SHE WAS SOBBING. SHE SAID, I NEED YOU TO COME IN THE ROOM WITH
ME. AT THAT POINT THEY HAD BEEN WORKING ON JOSEPH
FOR OVER 35 MINUTES. SHE TOOK MY HAND. SHE LED ME INTO THAT ROOM. I SAW MY SON. MY HEALTHY 5 YEAR OLD SON LAYING ON THE TABLE. WITH A NURSE GIVING HIM CHEST COMPRESSION. LISTENING TO THE DOCTOR. AFTER 35 MINUTES, THE DOCTOR TURNED TO ME
AND SAID I AM SO SORRY. I LEFT THAT DAY, THAT HOSPITAL, WITHOUT ONE
OF THE MOST IMPORTANT REASONS FOR MY LIVING. AND I HAD NO IDEA, NONE, THAT HEALTHY CHILDREN
OR ADULTS DIED FROM INFLUENZA. OR OTHER VACCINE PREVENTIBLE DISEASES. I DON’T REMEMBER EVER HEARING THOSE STORIES. SO VERY SOON AFTER JOSEPHS HAD PASSED AWAY,
I HAD TO SHARE JOSEPH’S STORY, LET PEOPLE KNOW WHAT HAPPENED TO US IN THE HOPES OF MAKING
SOMETHING GOOD COME OUT OF MY TRAGEDY. WE ARE TRYING TO HELP PREVENT THIS FROM HAPPENING
TO OTHER FAMILIES. SO THE 2019 2020 FLU BURDEN RIGHT KNOW, THIS
MORNING 92 PEDIATRIC DEATHS, ACCORDING TO THE PRELIMINARY BURDEN ESTIMATE FROM CDC ALREADY
UP WARDS OF 36,000 DEATHS. ON A GLOBAL SCALE, APPROXIMATELY 650,000 DEATHS
ACCORDING INFLUENZA RELATED. ONE THING THAT I TALK ABOUT WHEN I TALK ABOUT
JOSEPH’S STORY IS I DON’T KNOW WHO HIS PATIENT ZERO WAS. HE DIED DURING THE PANDEMIC THAT WAS A LITTLE
BIT OF A STRANGE FLU YEAR, OBVIOUSLY, BECAUSE OF THE PANDEMIC. HE HAD HIS SEASONAL FLU VACCINE. HOWEVER, WE KNOW H1N1 PANDEMIC STRAIN WAS
NOT IN THE VACCINE THAT YEAR. I DON’T DWELL ON IT BUT DO OFTEN THINK WHO
IS JOSEPH’S PATIENT ZERO. WAS IT SOMEONE IN HIS KINDERGARTEN CLASS? WAS IT SOMEONE AT THE SUPERMARKET? THAT, FOR ME, IS VERY MOTIVATING BECAUSE WHEN
I GET VACCINATED, I DON’T DO IT JUST TO PROTECT MYSELF. I ALSO DO IT TO PROTECT MY FAMILY, I DO IT
TO PROTECT OTHER PEOPLE I COME INTO CONTACT WITH, WITHIN MY COMMUNITY, SO FOR ME I ALWAYS
TRY TO RELATE THAT TO PEOPLE AND GET THEM TO UNDERSTAND THAT IT’S NOT JUST ABOUT US
AND OUR INDIVIDUAL HEALTH. I WILL SAY I HAVE GONE AROUND AND SHARED JOSEPH’S
STORY AT A LOT OF PLACES, CONFERENCES, SYMPOSIA, MEETINGS, TALKED WITH PEOPLE IN THE GROCERY
LINE, AT THE SUPERMARKET, AND IT ALWAYS ASTOUNDS ME HOW MANY MINDS I HAVE CHANGED. THERE’S PROBABLY SO MANY THAT I DON’T KNOW
OF BUT EVERY TIME I’VE GONE AND SPOKEN, SOMEONE ALWAYS USUALLY SNEAKS UP TO ME AFTERWARDS
AND SAYS, YOU KNOW, I KNOW THE DATA, I KNOW THE STATISTICS, I KNOW RECOMMENDATION FOR
FLU VACCINATION, BUT IT’S BECAUSE OF YOUR STORY TODAY THAT I’M GOING TO GO HOME AND
I’M GOING TO GET VACCINATED AND GET MY KIDS VACCINATED. SO I CAN’T SIMILAR TO TAMIKA PERSONAL STORIES
RESONATE WITH PEOPLE. THEY HAVE SUCH POWER. I THINK IT’S BECAUSE THEY ARE RELATABLE. PEOPLE LOOK AT ME THEY THINK, GOSH, I COULD
BE HER, THAT COULD BE MY CHILD, UNCLE, SISTER, BROTHER. THE FLIP SIDE OF THAT SHARING YOUR STORY PUBLICLY
IS THAT SOMETIMES YOU DO END UP IN THE BULLS EYE OF FOLKS WHO ARE ANTI VACCINATION, AND
FOR THOSE BRAVE ENOUGH TO SHARE OUR STORIES WE KNOW THAT’S A RISK. BUT WE DO IT ANYWAYS FOR THE GREATER GOOD. SO WHEN I HAVE A CONVERSATION WITH SOMEONE
ABOUT FLU AND VACCINATION, THESE ARE MY THREE TENETS, IF YOU WILL. I THINK IN MY BRAIN THIS INNER DIALOGUE IS
GOING ON, HOW CAN I GET THEM TO CARE ABOUT THIS? WHY SHOULD IT BE IMPORTANT TO THEM? AND THEN I TRY TO CONVEY TO THEM WHAT ARE
THE REAL RISKS TO THEM, RIGHT? WE DO TEND TO BE A LITTLE SELF CENTERED. SO I TRY TO EXPLAIN TO THEM, THIS IS A REAL
RISK. FLU IS A RISK. DOES NOT DISCRIMINATE. AND THEN THIRDLY, PERHAPS THE MOST IMPORTANT
ONE, I ARM THEM WITH KNOWLEDGE AND INFORMATION THEY NEED SO THAT THEY FEEL EMPOWERED TO MAKE
THAT INFORMED DECISION ABOUT VACCINATION. SO OUR COMMUNICATION STRATEGY HERE AT THE
ORGANIZATION IS WE TRY TO REALLY MEET PEOPLE WHERE THEY ARE. WHAT DO I MEAN BY THAT? THERE’S A LOT OF COMMUNICATION GOING ON OUT
THERE. I THINK WE’VE HEARD OVER THE PAST TWO DAYS
JUST HOW MUCH AND WE I THINK AS A SOCIETY ARE SO OVERWHELMED WITH INFORMATION. BUT THESE ARE THE CHANNELS THAT WE TRY TO
REALLY STAY ACTIVE ON. SOCIAL MEDIA IS A BIG ONE. SEVERAL PRESENTATIONS TALKED ABOUT IMPORTANCE
OF SOCIAL MEDIA. MAKING SURE THAT YOU ARE ON MULTIPLE CHANNELS,
REACHING PEOPLE BECAUSE PEOPLE ARE SPENDING THEIR TIME ON DIFFERENT PLATFORMS. DIGITAL MEDIA, OUR WEBSITE. EARNED MEDIA IS ANOTHER BIG ONE FOR US. MEDIA CAN BE FICKLE BUT OVER THE PAST SEVERAL
YEARS WE HAVE REACHED MILLIONS UPON MILLIONS OF PEOPLE THROUGH MEDIA OPPORTUNITIES. WHEN MY PHONE RINGS THEY WANT TO TALK TO US
AND REMEMBER WE HAVE A PANEL OF MEDICAL EXPERTS WE OFFER TO THEM AS WELL, NINE TIMES OUT OF
TEN THEY WANT TO TALK TO A FAMILY, ANOTHER IMPORTANT COMMUNICATION CHANNEL WE USE EVERY
FLU SEASON. OBVIOUSLY JUST THROUGH STAKEHOLDERS NETWORKS
AND STRATEGIC PARTNERSHIPS. WE HAVE TO THINK WHO AM I TRYING TO COMMUNICATE
WITH, WHERE ARE THEY GETTING THEIR INFORMATION, SO IT’S REALLY NOT A ONE SIZE FITS ALL WHEN
IT COMES TO COMMUNICATING TO FOLKS. SO SOCIAL MEDIA IS A CRITICAL CHANNEL. THESE DATA ARE FROM THE PEW RESEARCH CENTER. I JOKINGLY ALWAYS SAY FOR ME BECAUSE I’M A
47 YEAR OLD MOM, I GET MY INFORMATION FROM FACEBOOK, AND FREQUENTLY MY HUSBAND WILL SAY,
OH, DID YOU HEAR ABOUT THIS? I’M LIKE, WAS IT ON FACEBOOK? IF IT WASN’T, YOU KNOW, BUT IT GOES TO SHOW
THAT, YOU KNOW, IT CAN BE AN IMPORTANT SOURCE OF INFORMATION. YOU KNOW, THESE STATISTICS INDICATE A LOT
OF PEOPLE ARE GETTING THEIR INFORMATION FROM SOCIAL MEDIA. AND THAT’S DANGEROUS SOMETIMES, RIGHT? BECAUSE OF THAT MISINFORMATION. THE FACT SO MUCH OF THAT INFORMATION IS NOT
REGULATED. IT’S REALLY UP TO US AS CONSUMERS AND PATIENTS
TO MAKE SURE THAT WE ARE SEEKING OUT REPUTABLE SOURCES. AND THAT’S WHAT WE MESSAGE ON AT THE ORGANIZATION. HERE IS OUR COMMUNICATION DOs, BASED ON WHAT
WE’VE DONE OVER THE YEARS. OBVIOUSLY WE ARE AN ADVOCACY ORGANIZATION. WE UNDERSTAND THAT OUR MODE OF COMMUNICATION
AND WHAT WE COMMUNICATE ON IS GOING TO BE DIFFERENT FROM OTHER FOLKS. WE DON’T NECESSARILY HAVE THE SAME GUARD RAILS
THAT OTHER PEOPLE MIGHT HAVE. CERTAINLY WE ALWAYS TRY TO BE EVIDENCE BASED
IN OUR MESSAGING. USING MULTIPLE CHANNELS, CONNECTING WITH THEM,
WE’RE IF I HAVE ON FACEBOOK, TWITTER, LINKED IN, YouTube, INSTAGRAM. BREAK DOWN, IT’S NOT THE SAME PEOPLE. WE TRY TO THINK ABOUT WHO WE ARE MESSAGING,
WHO TIME OF MESSAGES RESONATE, WHAT CONTENT DO THEY NEED TO HEAR. WHAT KIND OF INFORMATION CAN WE PUT IN FRONT
OF THEM. REALLY THAT’S WHERE A LOT OF ENGAGEMENT AND
DIALOGUE IS HAPPENING. WE DO MORE THAN OUR FAIR SHARE OF COMMUNITY
MANAGEMENT. BUT THAT IS SOMETIMES WHERE THE CONVERSATION
IS HAPPENING. SO THAT’S WHERE WE HAVE TO MAKE SURE WE’RE
SPENDING OUR TIME. ONE IMPORTANT THING I WANT TO POINT OUT TOO
IS, YOU KNOW, WHEN YOU’RE DIALOGUING ON LET’S SAY FACEBOOK YOU HAVE TO THINK ABOUT SILENT
OBSERVERS, PEOPLE WHO AREN’T DIRECTLY ENGAGING ON THAT PARTICULAR POST OR THREAD BUT LET
ME TELL YOU THERE’S PEOPLE STALKING THAT INFORMATION. SO WHEN I MIGHT BE RESPONDING TO ONE INDIVIDUAL,
I’M THINKING WHO ELSE IS GOING TO SEE THIS, SOMETHING WE KEEP IN OUR MIND. BEING CONSISTENT IN OUR MESSAGING, BEING THE
TRUSTED RESOURCE. I HEARD TRUST A LOT, IT HITS THE NAIL ON THE
HEAD. PEOPLE WILL NOT BELIEVE WHAT YOU’RE SAYING
UNLESS YOU EARN THEIR TRUST. WE TRY TO USE THAT PEER TO PEER INFLUENCE
AS PARENTS TO MAKE SURE WE’RE LIKE YOU, TRYING TO HELP PROTECT OUR KIDS AND FAMILIES. WE TRY TO BE TIMELY IN OUR INFORMATION, WHETHER
TALKING ABOUT FLU SURVEILLANCE, RESEARCH, WHAT HAVE YOU. WE WANT TO MAKE SURE THEY ARE VIEWING US AS
A REPUTABLE SOURCE THAT’S KEEPING THEM UP TO DATE ON FLU RELATED ISSUES. BEING CREATIVE IS KEY. I THINK THAT’S SOMETHING THAT WE ALWAYS STRUGGLE
WITH EVERY YEAR IS HOW DO WE SAY GET VACCINATED IN A CREATED WAY EVERY YEAR, RIGHT? YOU HAVE TO WORRY ABOUT AUDIENCE FATIGUE,
SOMETHING WE’RE CONSCIOUS ABOUT, WE DON’T WE WANT TO KEEP IT FRESH, NEW AND ENGAGING. WE ARE EVIDENCE BASED, RELY ON SCIENCE. WE TALK ABOUT FACTS AND STATISTICS, IMPORTANT
FOR SURE, KNOWING YOUR AUDIENCE LIKE I JUST SAID, IDENTIFYING WITH THEM, KEEPING THE CONVERSATIONS
RESPECTFUL AND COMPASSIONATE. I WILL TELL YOU I HAVE RECEIVED DEATH THREATS,
I HAVE BEEN CALLED EVERY NAME IN THE BOOK. I’M SURE A LOT OF US IN THIS ROOM HAVE BEEN. BUT I ALWAYS HOLD MYSELF TO A STANDARD THAT
I REMAIN RESPECTFUL AND COMPASSIONATE. WHEN I CAN’T DO THAT I EXIT THE CONVERSATION. AND I WANT TO MAKE SURE OUR COMMUNICATIONS
ARE SIMPLE AND TRANSPARENT TOO. SHARING RELATABLE PERSONAL STORIES, IT’S AMAZING
WHEN WE LOOK AT OUR SOCIAL MEDIA METRICS AND THE TYPE OF CONTENT WE’RE PUTTING OUT THERE,
TIME AND TIME AGAIN THE ENGAGEMENT OF PERSONAL STORIES GOES THROUGH THE ROOF. YOUR GOAL IS TO ENGAGE AUDIENCE, HELP THEM
MAKE INFORMED DECISIONS. WHEN I SHARE JOSEPH’S STORY WITH SOMEONE,
I DON’T SHOVE IT DOWN THEIR THROAT. I MEAN I SHARE IT IN A COMPASSIONATE WAY AND
SAY, THIS IS JUST ANOTHER PIECE OF INFORMATION. THIS IS ANOTHER DATA POINT FOR YOU TO CONSIDER. AND I THINK, AGAIN, HOPEFULLY LEADING THEM
TO BELIEVE THAT I’M EMPOWERING THAT EMPOWERING THEM WITH EDUCATION. I’M NOT MAKING THEM FEEL LIKE I’M BEING JUDGMENTAL
OR TAKING ANYTHING AWAY. STORYING TELLING IS IMPORTANT. WE HAD A BEHAVIORAL SCIENTIST ON THE PANEL
EARLIER, BRILLIANT, AND I’M NOT A BEHAVIORAL SCIENTIST BUT THERE’S THEORIES. WE CALL OUR STORY TELLING NARRATIVE COMMUNICATION. THERE’S SEVERAL THEORIES WE CAN RELY ON TO
TRY TO INFLUENCE PEOPLE’S HEALTH RELATED BEHAVIOR. MOST OF OURS PROBABLY FALLS INTO THE HEALTH
BELIEF MODEL BECAUSE WHEN WE’RE SHARING PERSONAL STORIES WE’RE TALKING ABOUT SUSCEPTIBILITY,
SEVERITY, THAT TYPE OF THING. SO THIS IS THE STATISTIC ABOUT A STATISTIC
WHICH I ALWAYS FIND FUNNY BUT THIS WAS FROM A PSYCHOLOGIST BY THE NAME OF JEROME BRUNER. I SAW THIS PROBABLY A YEAR AND A HALF AGO. IT STRUCK ME, I PULLED IT OUT. BUT STORIES ARE 22 TIMES MORE MEMORABLE THAN
STATISTICS. AGAIN, IT’S NOT THAT WE DON’T AGREE WHOLEHEARTEDLY
THAT DATA AND STATISTICS ARE AN IMPORTANT PART OF THE NARRATIVE BUT PEOPLE ARE GOING
TO REMEMBER THOSE PERSONAL STORIES BECAUSE THEY ARE RELATABLE. SO JUST QUICKLY, SOME OF OUR COMMUNICATION
DON’TS, DON’T BE JUDGMENTAL, I THINK THAT’S REALLY HARD SOMETIMES ESPECIALLY FOR ME BECAUSE
I AM SO EMOTIONALLY INVESTED AND CLOSE TO IT THAT WHEN I SEE SOMEONE WHO IS IN THAT
ANTI VACCINATION GROUP, SAY SOMETHING NASTY, I HAVE TO HAVE THAT INNER DIALOGUE WITH MYSELF
AND SAY YOU KNOW WHAT? I’M GOING TO THINK AND BELIEVE THAT THEY ARE
JUST TRYING TO DO THE BEST THEY CAN WITH THE INFORMATION THAT THEY HAVE. THEIR OBJECTIVE IS SAME AS MINE, THAT’S TO
HELP PROTECT THEMSELVES AND THEIR FAMILIES. AVOID AUDIENCE FATIGUE, KEEPING IT CREATIVE,
AS FAR AS MESSAGING, I THINK MAKING SURE THAT THE INFORMATION IS NOT TECHNICAL. PEOPLE’S EYES WILL GLAZE OVER. WE DISTILL TO CONVEY INFORMATION IN A WAY
THAT IS EASILY UNDERSTANDABLE. PUTTING EVERYTHING INTO CONTEXT IS ALWAYS
IMPORTANT. WHEN I SAY DON’T ASSUME AUTHORITATIVE POSITION
I’M NOT TALKING ABOUT PRESUMPTIVE APPROACH WITH HEALTH CARE PROFESSIONALS, I BELIEVE
THAT’S SOMETHING ALL HEALTH CARE PROFESSIONALS SHOULD TAKE AND USE, THIS MORE RELATES TO
BEING JUDGMENTAL. PEOPLE DON’T LIKE PEOPLE BEING TOLD THEIR
WRONG OTHER MADE TO FEEL LIKE THEY KNOW LESS. WE TRY TO KEEP THAT IN MIND WHEN MESSAGING
WITH PEOPLE. FEAR MONGERING IS NOT SOMETHING WE DO. THAT’S A DELICATE KIND OF BALANCE SHARING
PERSONAL STORIES, WE HAVE PERSONAL STORIES OF LOSS, OF SURVIVORSHIP. THE LAST THING WE WANT TO DO IS HAVE IT APPEAR
WE’RE USING STORIES IN A MALICIOUS WAY TO SCARE PEOPLE. PRESENTATION IS EVERYTHING. THE WAY WE SHARE THOSE STORIES IS VERY IMPORTANT. WE WANT IT TO BE DONE IN A COMPASSIONATE WAY,
NOT A FEAR MONGERING WAY. WHAT WE DO IS ALIGN OUR MESSAGING. I THINK THE MORE UNITED WE ALL ARE IN WHAT
OUR MESSAGING IS, THE BETTER. IT LEADS BACK TO THE CONSISTENCY AGAIN. SO THIS PICTURE HERE IS A PICTURE OF MADDIE
ELLEN, ONE OF OUR FAMILIES. I FREQUENTLY SAY IF I SAID NOTHING ELSE AND
PUT THIS PICTURE UP AND SAID THIS IS WHAT FLU CAN DO, THIS PICTURE IS WORTH A THOUSAND
WORDS. SHE WAS HOSPITALIZED FOR 93 DAYS, GIVEN 1%
CHANCE TO LIVE. MIRACULOUSLY SHE DID LIVE. SHE HAS SERIOUS LIFELONG MEDICAL COMPLICATIONS
AS A RESULT OF THE ILLNESS BUT AGAIN WE WANT PEOPLE TO BE USING THESE PATIENT STORIES IN
THEIR CONVERSATIONS WITH PATIENTS. IF YOU’RE A HEALTH CARE PROFESSIONAL, WE USE
THEM ON SOCIAL MEDIA, LIKE I MENTIONED. DIGITAL MEDIA. WE HAVE I BELIEVE OVER 50 STORIES, FAMILY
STORIES, ACROSS THE LIFESPAN, NOT JUST CHILDREN. OF PEOPLE WHO HAD PERSONAL EXPERIENCES WITH
FLU. AGAIN, SOME LOST, SOME SURVIVORS, IN EARNED
MEDIA. AGAIN, IT COMES BACK TO THE RELATABLE CONTENT. ONE THING THAT WE’VE REALLY MADE A CONCERTED
EFFORT TO DO AT THE ORGANIZATION IS TO DIVERSIFY OUR FAMILY STORIES BECAUSE PEOPLE RELATE TO
PEOPLE THAT THEY IDENTIFY WITH SO WE WANT TO MAKE SURE THAT WHETHER WE’RE TALKING ABOUT
AGE, GENDER, ETHNICITY, SOCIOECONOMIC STATUS, WE WANT TO MAKE SURE THAT WE DO OUR VERY BEST
TO SHARE SOME OF THAT RELATED CONTENT AS PART OF OUR MESSAGING. SO I’LL END WITH THIS SLIDE. THIS IS JUST A LITTLE COLLAGE BY NO MEANS
THESE PICTURES DO NOT REPRESENT ALL OF OUR FAMILY STORIES. BUT WE PUT A FACE ON THE FLU. THIS IS MOST SIMPLE TERMS, WHAT WE DO. GOAL IS TO SAVE LIVES. AND I KNOW I SHARED EARLIER WHAT MY EXPERIENCE
HAS BEEN, WHERE EVERY TIME SOMEONE SNEAKS UP TO ME AFTERWARDS AND SAYS I’M GOING TO
GET VACCINATED AFTER I HEARD YOUR STORY, OTHER FAMILY MEMBERS GO AND SPEAK EVERYWHERE, THEY
HAVE THE SAME STORIES, THEY COME HOME WITH. OH MY GOSH, I CHANGED SOMEBODY’S MIND TODAY. I DON’T HAVE A SURVEY AND METRICS BUT IT’S
SOMETHING WE EXPERIENCE ON A DAILY BASIS. YESTERDAY THERE WERE SCIENTIFIC PRESENTATIONS
ABOUT UNIVERSAL FLU VACCINE, THAT’S WONDERFUL, THE VACCINES SAVE LIVES. THERE’S NO QUESTION. THERE’S NO QUESTION THAT THEY ARE SAFE AND
EFFECTIVE. IT’S LOVELY WE’RE DOING RESEARCH AND DEVELOPMENT
EFFORTS TO HAVE A BETTER FLU VACCINE. WHERE I COME FROM WE STILL IT’S NOT THE END
ALL, BE ALL, FIX ALL. WE HAVE TO COMMUNICATE WITH PEOPLE AND LET
THEM KNOW FLU IS A RISK TO THEM. WE STILL HAVE TO FIND WAYS TO COMMUNICATE
WITH THEM BECAUSE HAVING A VACCINE ON THE SHELF DOESN’T DO US ANY GOOD. WE NEED TO GET IT IN PEOPLE’S ARMS. SO LASTLY I WILL JUST LEAVE YOU WITH THE SENTIMENT
THAT I CAN’T CHANGE MY STORY. I CAN’T CHANGE JOSEPH’S STORY OR CHANGE THE
STORIES OF THESE BEAUTIFUL LITTLE FACES THAT YOU SEE IN FRONT OF YOU. BUT I CAN TELL YOU THAT WE CAN HONOR THEM
AND WE CAN USE THESE STORIES AGAIN IN A COMPASSIONATE PALATABLE WAY TO CHANGE VACCINATION BEHAVIOR. THANK YOU FOR YOUR TIME. [APPLAUSE]>>THANK YOU. MISS BARNES?>>
>>HI, EVERYONE. I’M ZAHRA BARNES, HEALTH DIRECTOR AT SELF
MAGAZINE. AND I’M INCREDIBLY EXCITED TO BE HERE WITH
ALL OF YOU TALKING ABOUT SOMETHING THAT WE CARE ABOUT A LOT AS A BRAND BUT THAT I ALSO
CARE ABOUT A TON AS JUST A HUMAN WHO IS SO MOVED BY THE TYPES OF STORIES HE ALL HAVE
SHARED TODAY. SO, FOR A BIT OF BACKGROUND ABOUT SELF, WE’RE
FOUNDED IN 1979, AND HAVE SINCE THEN BECOME A TRUSTED WOMEN’S HEALTH MEDIA BRAND. SO ONE OF THE THINGS THAT GUIDES US IN OUR
ULTIMATE MISSION TO HELP PEOPLE FEEL BETTER IS A SET OF REALLY IMPORTANT CORE VALUES THAT
BASICALLY UNDERGIRD OUR STORY TELLING NO MATTER WHERE FORMAT THAT STORY TELLING IS IN. SO THE FIRST VALUE YOU’LL SEE IS EMPATHY. MEET PEOPLE WHERE THEY ARE, WE KEEP THAT IN
MIND. NEXT UP, ACCURACY, BIG ONE FOR US. IF YOU’RE NOT GIVING PEOPLE THE CORRECT INFORMATION,
THERE’S NO WAY FOR THEM TO REALLY SHAPE THEIR LIVES AND ACHIEVE THEIR GOALS IN THE WAY THEY
ARE INTENDING. WE ALSO HAVE INCLUSIVITY, WHICH IS MAJOR,
ESPECIALLY WHEN AS YOU WERE SAYING PEOPLE ARE LOOKING TO SEE THEMSELVES REFLECTED IN
STORIES. PEOPLE AREN’T NECESSARILY GOING TO WANT TO
USE OUR INFORMATION, VISIT US, VIEW US AS AN AUTHORITATIVE TRUSTED SOURCE, IF THEY DON’T
EVEN FEEL WELCOME WHEN THEY ARE COMING TO OUR WEBSITE. FINALLY, BODILY AUTONOMY, OF COURSE SUCH A
HUGE PART OF THE CONVERSATION WHEN WE’RE TALKING ABOUT VACCINATION. WE BELIEVE ULTIMATELY THAT EVERYONE KNOWS
THEIR BODY BEST. AND OUR GOAL IS REAL TO PROVIDE PEOPLE WITH
THE INFORMATION AND MOST COMPELLING WAY POSSIBLE TO MAKE THE BEST DECISIONS FOR THEMSELVES
AND THEIR BODIES. SO WHY VACCINE SAVE LIVES? HOW THE OF MANY PUBLIC HEALTH THREATS OUT
THERE, WHY WOULD WE DECIDE TO FOCUS ON THIS ONE? AND YOU ALL HAVE HEARD A LOT OF WHAT I’M ABOUT
TO SAY, BUT TO KIND OF SHOW WHAT YOU WE WERE THINKING FROM AN EDITORIAL STANDPOINT WHEN
MAKING THIS DECISION, HERE ARE A COUPLE THINGS WE HAD IN MIND. WE KNOW THAT VACCINATION PREVENTS BETWEEN
2 AND 3 MILLION DEATHS WORLDWIDE EVERY SINGLE YEAR. WHICH AS SOMEONE WHO IS DAY IN AND DAY OUT
DIGGING THROUGH STATISTICS EVEN I RECOGNIZE THIS IS A WHOPPING NUMBER, CLEARLY VACCINES
ARE INCREDIBLY EFFECTIVE. UNFORTUNATELY, WE ALSO KNOW THAT VACCINE HESITANCY
WAS NAMED ONE OF THE TOP TEN THREATS. WE KNOW CERTAIN VACCINE PREVENTIBLE DISEASES
ARE ON THE RISE BOTH HERE AND THE UNITED STATES, AND ELSEWHERE. BEYOND THAT WE KNOW PEOPLE WHO ARE VACCINE
HESITANT AREN’T NECESSARILY ANTI VACCINE AS WE SAW IN THE GREAT SPECTRUM EARLIER TODAY. WE SIMPLY ARE NOT CONVINCED BENEFITS OF VACCINATION
OUTWEIGH THE RISKS. OF COURSE, A LOT IS BECAUSE OF THE MISINFORMATION
WE’VE BEEN DISCUSSING HERE TODAY. IT WAS HONESTLY MIND BOGGLING AND FRANKLY
SCARY AS A HEALTH EDITOR WHEN I WAS LOOKING THROUGH ALL THIS MISINFORMATION WHEN BRAINSTORMING
HOW WE WANTED TO TACKLE THE PACKAGE, A LOT CAN SEEM CONVINCING IF YOU DON’T HAVE FACT
IT’S AND STORY TELLING. WE HAD TO KEEP THAT AT THE FOREFRONT OF OUR
MINDS WITH EVERYTHING WE DID WITH THIS PACKAGE. EVEN DEBUNKS VACCINE MISINFORMATION DOES NOT
WORK. WE HEARD PEOPLE ARE MORE LIKELY TO HEAR STATEMENTS
HEARD REPEATEDLY EVEN IF YOU’RE EXPLAINING WHY THE STATEMENTS ARE FALSE. IT’S COMPLEX. I DIDN’T EXPECT THAT THE HUMAN BRAIN WOULD
WORK THAT WAY BUT WE ARE COMPLICATED CREATURES, SO I GUESS IT MAKES SENSE. SO OUR MISSION WITH VACCINES SAVES LIVES WAS
TO KEEP ALL OF THAT IN MIND AND ULTIMATELY COMBAT THIS PERVASIVE PUBLIC HEALTH THREAT
INSTEAD OF ACCIDENTALLY CONTRIBUTING TO IT. WE DID THAT WITH A MIX OF TOPICS. SO WE USED STORY TELLING, VERY VIGOROUS REPORTING,
AND CREATIVE IMAGERY TO SHOW WHY VACCINES WERE VITAL TO THEM, THEIR LOVED ONES AND COMMUNITIES
AT LARGE. WE WANT TO HELP PEOPLE FEEL BETTER, THAT’S
OUR MISSION. BUT WE ALSO WANT TO HELP PEOPLE BE RESPONSIBLE
CITIZENS IN THE FACE OF THE REALLY DANGEROUS GLOBAL HEALTH THREAT. SO I’M GOING TO TAKE YOU THROUGH THE DIFFERENT
ASPECTS WE HAD IN THIS EDITORIAL PROJECT. THE FIRST VERY DEAR TO MY HEART BECAUSE AS
HEALTH DIRECTOR AT “SELF” I KNOW THAT OUR MISSION IS TO CONSISTENTLY PROVIDE ACTIONABLE
REALISTIC ADVICE PEOPLE CAN USE TO BETTER THEIR LIVES. SERVICE JOURNALISM THAT WAS GIVING PEOPLE
INFORMATION THEY COULD IMMEDIATELY ACT ON OR IMMEDIATELY SHARE WAS A MUST. HERE ARE A COUPLE OF EXAMPLES OF THE STORIES
WE INCLUDED. FOR INSTANCE WE DID WHAT IS HERD IMMUNITY
AND WHY DOES IT MATTER? BREAKING IT DOWN INTO REALLY DIGESTIBLE INFORMATION
THAT MAKES THIS HIGHLY TECHNICAL WORLD A LITTLE BIT EASIER FOR PEOPLE TO WALK AWAY AND FEEL
LIKE THEY KNOW WHY VACCINATION IS SO IMPORTANT. ANOTHER ONE I LOVED, HERE ARE VACCINES YOU
NEED AS AN ADULT. THAT CAN BE VERY CONFUSING. IT CAN FEEL LIKE A MYSTERY WORLD, EVEN SORTING
THROUGH INFORMATION ON THE INTERNET IS TOO MUCH SO WHY JUST DEAL WITH IT, WE WANTED TO
PACKAGE THAT REALLY NICELY FOR PEOPLE TO HELP THEM STAY SAFE. COMPELLING PERSONAL ESSAYS AS WE’VE TALKED
ABOUT HERE, YOU KNOW, STATISTICS ARE WONDERFUL, DEAR TO MY HEART, LOVE DIGGING THROUGH SCIENCE. BUT DEBUNKING VACCINE MISINFORMATION DOESN’T
WORK. STATISTICS ARE SOMETIMES EASILY FORGETTABLE. WE HAD TO INCLUDE BEAUTIFUL MOVING EMOTIONAL
COMPELLING PERSONAL ESSAYS TO PUT A HUMAN FACE TO THE TOPIC. A COUPLE REALLY LOVELY EXAMPLES, MY CHILD
CAN’T GET VACCINATED, HERE IS WHAT LIFE IS LIKE FOR US. A MOM TALKS ABOUT HOW HER CHILD HAD A HEART
TRANSPLANT AS A BABY AND IS NOW IMMUNOCOMPROMISED. SHE CANNOT RECEIVE VACCINES OR LIVE VACCINES,
RATHER. AND SHE IS ESSENTIALLY MAKING A PLEA TO ALL
READERS TO GET VACCINATED IN ORDER TO HELP KEEP HER CHILD AND OTHER IMMUNOCOMPROMISED
PEOPLE SAFE. THAT’S THE TYPE OF VERY RELATABLE LOVE BASED
HUMAN BASED STORY THAT CAN CHANGE PEOPLE’S MINDS. ANOTHER ONE THAT GOT A GREAT REACTION, I USED
TO BE AN ANTI VAXER. HERE IS WHAT CHANGED MY MIND. WE HAD TO EMPHASIZE WITH THIS PACKAGE WE HAVE
NOT VIEWING THIS AS US VERSUS VACCINE HESITANT PEOPLE OR US VERSUS ANTI VAXERS. OUR GOAL WAS TO SHOW PEOPLE THAT NO MATTER
WHERE YOU FALL ON THE SPECTRUM WE ALL HAVE A MISSION OF STAYING SAFE AND KEEPING OUR
LOVED ONES SAFE. AND THERE ARE LOTS OF REASONS WHY PEOPLE MIGHT
FALL ON DIFFERENT PARTS OF THE SPECTRUM AND WE WANTED TO SHOW PEOPLE WHY SOMEONE WHO USED
TO BE ON THE ANTI VAXER SIDE REALIZED VACCINATIONS ARE ACTUALLY KEY IN HELPING HER ACHIEVE HER
GOAL OF KEEPING HERSELF AND HER LOVED ONES SAFE. FINALLY, CREATE A DATABASE OF POSITIVE VACCINE
IMAGERY. SOMEONE WHO IS CONSTANTLY WORKING WITH WORDS,
AND USUALLY DEEP IN THE WEEDS WITH DRAFTS OF STORIES, I FOUND THIS PART OF THE PROJECT
PARTICULARLY DELIGHTFUL. SO WE DECIDED TO SOLVE A PROBLEM THAT WE HEARD
ABOUT AGAIN AND AGAIN FROM MEMBERS OF THE MEDICAL COMMUNITY WHICH WAS THERE WAS A LACK
OF POSITIVE ACCURATE REALISTIC VACCINE IMAGERY, AS WE SAW EARLIER, YOU’LL SEE IMAGES OF BABIES
WAILING IN PAIN WITH TONS OF NEEDLES STICKING OUT OF THEM, NO PARENT TO BE FOUND. CLEARLY THAT’S NOT HOW IT WORKS. WE PARTNERED WITH AMERICAN ACADEMY OF PEDIATRICS,
AND PRIMARY CARE SERVICE ONE MEDICAL, TO PRODUCE THIS REALLY STUNNING I’M BIASED, BUT REALLY
STUNNING PHOTO SHOOT OF NOT FEAR MONGERING, ACCURATE REALISTIC REAL LIFE VACCINE SCENARIOS. THESE EVEN INCLUDE REAL DOCTORS. IT WAS THE REAL DEAL. WORKED CLOSELY WITH SOCIAL MEDIA PARTNERS
TO ENSURE BRAND AND STAFF SAFETY. WE KNEW THAT EVEN THOUGH THIS IS A VERY WORTHY
AND GREAT PROJECT TO TAKE ON, WE WERE ALSO UNFORTUNATELY OPENING OURSELVES UP TO POTENTIAL
BACKLASH. SO WE WORKED WITH THE VARIOUS SOCIAL MEDIA
SITES, TO PROTECT NOT ONLY OUR BRAND’S CHANNEL AND GIVE STAFF MEMBERS INFORMATION TO PROTECT
THEIR OWN CHANNELS AND WORKED WITH OUR CORPORATION DO MAKE SURE OUR WEBSITE WOULD BE EXTRA SECURE
AGAINST CYBER SECURITY ATTACKS SINCE UNFORTUNATELY THAT’S SOMETHING WE HAD TO CONSIDER. THAT’S ONE OF OUR INSTAGRAM POSTS. ONE OF THE INTERESTING THINGS ABOUT THIS WAS
THAT WE ACTUALLY CLOSED THE COMMENTS ON OUR INSTAGRAM POSTS ABOUT THE PROJECT BECAUSE
WE DIDN’T WANT TO GIVE A PLATFORM FOR PEOPLE TO DISSEMINATE VACCINE MISINFORMATION. OF COURSE, EVEN IF WE IMMEDIATELY JUMPED IN
WITH THE ACCURATE INFORMATION, AS WE’VE DESCRIBED IT, IT IS DAMAGING WHEN PEOPLE SEE THESE MYTHS
REPEATED. AND NORMALLY WE ARE TOTALLY ON BOARD WITH,
YOU KNOW, UPLIFTING AND ELEVATING PEOPLE’S DIFFERENT OPINIONS BUT WE KNEW IN THIS CASE
FOR PUBLIC SAFETY IT WAS VERY IMPORTANT THAT WE NOT GIVE A PLATFORM FOR THAT. SO, WE NOTIFIED HEALTH EXPERTS, MEDIA AND
ORGANIZATIONS, AFTER WE HAD PUT ALL OF THIS WORK INTO VARIOUS MOVING PARTS OF THE PROJECT,
WE DECIDED, OKAY, WE DO NOT ONLY WANT TO BE SPREADING THIS ON OUR PLATFORM. WE HAVE A BUILT IN AUDIENCE. IT’S GREAT. FOUNDED IN 1979. WE SPENT A LOT OF TIME BUILDING IT UP. BUT THIS IS SUCH AN IMPORTANT MESSAGE THAT
WE REALLY WANTED TO GO BEYOND THAT BECAUSE THERE ARE A LOT OF PEOPLE WHO NEED TO HEAR
IT. SO WE SPREAD THE WORD TO DOCTORS. WE SPREAD THE WORD TO DIFFERENT HEALTH WEBSITES. WE CREATED A SPECIAL NEWSLETTER WITH THE AMERICAN
ACADEMY OF PEDIATRICS. WE LET EVERYONE KNOW THAT THOSE INCREDIBLE
PHOTOS YOU SAW COMPLETELY FREE TO USE FOR ANYONE, AND WE THEN LET IT OUT THERE AND SAID,
OKAY, IF YOU ALL FIND THIS PROJECT COMPELLING, AND WORTHWHILE, PLEASE, YOU KNOW, SPREAD THE
WORD. LUCKILY WE WERE VERY SUCCESSFUL IN THIS PROJECT. WE REALIZED WE HAD REALLY SPARKED A LARGER
CONVERSATION. NEWS OUTLETS AND BLOGS PRETTY MUCH IMMEDIATELY
STARTED USING THE PHOTOS WHICH IS REALLY WONDERFUL TO SEE. WE ALSO GOT A LOT OF FEEDBACK FROM MEDICAL
PROFESSIONALS, AND PEOPLE IN THE MEDIA WHO WERE SAYING, OKAY, WE HAVE BEEN CRAVING IMAGES
LIKE THIS, THANK YOU FOR PROVIDING A FREE RESOURCE THAT WE CAN USE TO ILLUSTRATE THE
REALITIES OF VACCINATION. AND WE GOT A LOT OF SOCIAL CHATTER, COVERAGE
FROM EVERYONE FROM THE “NEW YORK TIMES” TO AD WEEK, A LOT OF PEOPLE REACHING OUT TO US
PERSONALLY TO SAY THANK YOU SO MUCH FOR PUTTING YOUR EDITORIAL PLATFORM BEHIND SOMETHING SO
IMPORTANT AND UNFORTUNATELY MISUNDERSTOOD. THE MORE OF US TO SPREAD THE MESSAGE, THE
BETTER. AND WE WERE GLAD TO BE PART OF IT. THANK YOU.>>THANK YOU VERY MUCH, MISS BARNES. LET’S HAVE A ROUNDS OF APPLAUSE FOR ALL OF
THE MEMBERS OF THE PANEL. [APPLAUSE]
UNFORTUNATELY WE ARE RUNNING SHORT ON TIME SO I’M GOING TO TAKE THE CHAIR’S PREROGATIVE
AND WE WILL NOT HAVE COMMENTS TO AUDIENCE, FROM THE AUDIENCE AT THIS POINT. I WANT TO CERTAINLY THANK DR. GRIMES, MISS FELDER, MISS MAROTTA AND MISS
BARNES FOR YOUR PRESENTATIONS, WE’LL MOVE TO THE LAST SESSION FOR THE DAY. NEXT PRESENTER IS ZAK HOCHSTETLER, HE WILL
TALK ABOUT VACCINE COUNSELING CODING CHANGES FOR 2021, HE’S FROM THE AMERICAN MEDICAL ASSOCIATION,
HE’S GOING TO DISCUSS NEW CPT CODES, 99201 TO 99215. REMEMBER THOSE. DEVELOPED FOR USE IN 2021 TO REVIEWS ADMINISTRATIVE
BURDEN AND ENSURE PAYMENT FOR TOTAL TIME OF VACCINATION COUNSELING AND ADMINISTRATION. THANK YOU FOR YOUR TIME
AND PRESENTATION.>>THANKS. I CAN I’LL GO THROUGH THE SLIDES QUICKLY AND
I THINK YOU’VE ALL HAD A CHANCE TO LOOK AT THE SLIDES BUT WE’LL ALSO HAVE SOME ADDITIONAL
DETAILS, POTENTIALLY AT A LATER DATE AS WELL SINCE A LOT OF WHAT I’M TALKING ABOUT IS COMING
IN THE FUTURE AND WE CAN CERTAINLY COME BACK, I CAN COME BACK OR WE CAN WORK WITH THE SUMMIT
TO STATE SOME ADDITIONAL ACTIONS THAT WE’VE HAD. AGAIN, CPT EVALUATION AND MANAGEMENT OFFICE
VISITS, THEY HAVE BEEN AROUND FOR QUITE A WHILE BUT ALSO BECAUSE OF TOTAL VOLUME WITHIN
MEDICARE SPEND, A QUARTER OF ALL PART B MEDICINE, PAYMENTS OUT OF MEDICARE. SO AGAIN THESE ARE 10E AND M CODES, ONE QUARTER,
AND ALL OTHER CPT CODES ROUGHLY 10,000, REPRESENT THE THREE QUARTERS, SMALL CONCENTRATION OF
OFFICE VISITS REPRESENT A LOT OF SPEND WITHIN MEDICARE. THE LAST TIME THEY WERE UPDATED WAS NEARLY
30 YEARS AGO. AND WHAT’S HAPPENED IS RISE OF E.M.Rs, UPCODING,
TEN YEARS AGO LEVEL 3 WAS PREDOMINANTLY USED CODE BUT NOW HAVE YOU LEVEL 4 AND 5 RISING
THAT ISN’T DUE TO ANYTHING RELATED TO FRAUD BUT MORE SO AROUND THE EASE OF CHECKING BOXES
AND CLICKING THROUGH YOUR EMR HAS LED TO THAT. AMA HAS BEEN WANTING TO LAST 10 TO 15 YEARS
MAKE REVISIONS TO THE OFFICE GUIDELINES BUT THERE’S BEEN OPPOSITION AND ANYTIME THERE’S
A CHANGE, EVEN IF IT’S IN A POSITIVE OR FORWARD MOVEMENT IT’S STILL DIFFICULT. HOWEVER, WHEN CMS PROPOSED THEIR CHANGES IN
2019 AND GALVANIZED THE PHYSICIAN COMMUNITY, AND SO I’M NOT GOING TO READ ALL THOSE BUT
UPDATING, PROPOSED REALLY MONUMENTAL CHANGES TO OFFICE VISITS. AMA WE SEE OURSELVES AS A CONVENER, BECAUSE
WE HAVE DEDICATION TO REMOVING OBSTACLES THAT INTERFERE WITH PATIENT CARE AND A LOT OF CONNECTION
WITH PUBLIC AND PRIVATE PAYERS BUT ALSO THEN FINALLY CPT EDITORIAL PANEL WHICH HAS SOLE
AUTHORSHIP OF THE CODE SETS, THEY WERE ABLE TO USE DATA DRIVEN PROCESS, UTILIZING THE
INPUT FROM HUNDREDS OF CLINICAL EXPERTS. SO WHAT WE DID HERE, AMA, WE HAD A JOINT WORK
GROUP ON THE E AND M. WE DIDN’T WANT A GROUP OF 17 INDIVIDUALS TO
MAKE ALL DECISIONS ALONE SO THEY GOT INPUT FROM HUNDREDS AND HUNDREDS OF CLINICIANS TO
GET THESE CHANGES RIGHT. AGAIN, WORK GROUP PROCESS WAS FOCUSED ON TRANSPARENCY
AND INCLUSION, SO REALLY IT WAS AROUND SIMPLIFYING THE WORK OF OFFICE VISITS AND ALSO BUT IN
TANDEM IMPROVING HEALTH OF THE PATIENT, YOU’LL SEE GUIDE BE PRINCIPLES THERE. BUT THEY ARE STERNED AROUND CENTERED AROUND
ADMINISTRATIVE BURDEN, CREEPED IN OVER 20 YEARS IT’S BEEN AROUND. ONE THING I WANT TO MAKE SURE, WE’RE TALKING
ABOUT E AND M OFFICE VISITS, I’LL GET TO SPECIFICS ABOUT VACCINE IN A BIT. ACTIVE IN 2021, JANUARY 1, WE’RE TALKING ABOUT
FUTURE CHANGES, SO AS CODING STANDS TODAY NOTHING HAS CHANGED BUT WILL FOR JANUARY 2,
2021. HERE IS A QUICK SUMMARY OF THE OFFICE VISIT
REVISIONS. AGAIN, JUST EXTENSIVE GUIDELINE ADDITION REVISION
AND RESTRUCTURING. I WON’T GET INTO THAT. I WANT TO FOCUS ON HOW IT MIGHT CHANGE OR
IMPROVE EVEN VACCINE COUNSELING. BUT THERE WAS A DELETION, LOWEST LEVEL OFFICE
VISIT. THAT WAS JUST TO ALIGN NEW PATIENT AND ESTABLISHED
PATIENT AS WELL AS CREATING SHORTER 15 MINUTE PROLONG SERVICES CODE WHICH I’LL TALK ABOUT. TO SIMPLIFY, NOW YOU DON’T HAVE TO TAKE A
HISTORY AND EXAM, JUST MEDICALLY APPROPRIATE, REDUCING SOME OF THE CHECK BOXING THAT CURRENTLY
EXISTS AS WELL AS YOU CAN CHOOSE YOUR PATHWAYS OR TIME, AND TIME IS GOING TO BE THE KEY DRIVER
TO A LOT OF CHANGES WE’RE GOING TO SEE IN VACCINE COUNSELING OR LIKELY TO SEE IN THE
FUTURE. HERE’S HIGHLIGHTS OF WHAT WE’RE REVISING. MEDICAL DECISION MAKING ISN’T GOING TO AFFECT
SORT OF WHAT WE’RE TALKING ABOUT IN THE CONTEXT OF THIS GROUP. THERE WAS WE KEPT THE SIMILAR FRAMEWORK THERE
BUT THERE WAS EXTENSIVE CLARIFICATION MADE, THE IMPROVEMENTS WERE BETTER DEFINITION OF
EXISTING CONCEPTS. WITH TIME THOUGH THIS IS WHAT’S REALLY CHANGED
THEN IS THAT IT’S THE TOTAL TIME ON DATE OF THE ENCOUNTER, NOT FACE TO FACE ANYMORE, YOU
SEE IT INCLUDES NON FACE TO FACE CARE, COULD BE MORNING OR AFTER, BUT DOES HAVE TO BE 24
HOURS MORNING OR NIGHT OF THE ENCOUNTER. AGAIN WE TRY TO CLARIFY THAT TIME RANGES,
SO YOU’LL SEE HERE TERMINOLOGY MEDICALLY APPROPRIATE HISTORY AND EXAM, AND THEN THIS IS A LEVEL
5 ESTABLISHED PATIENT. YOU’LL SEE TIME RANGES AS WELL. FOR THEIR CLEARLY DISTINCT 48 TO 54 MINUTES,
AND WITH REFERENCE AT THE BOTTOM THAT YOU CAN USE FOR 55 MINUTES OR LONGER, YOU CAN
SEE USE THE NEW PROLONGED SERVICES CODE. PROLONGED SERVICES CODE HAS XXX, WE HAVEN’T
ASSIGNED A NUMBER, TALKING ABOUT CHANGES EARLY. WE WON’T ASSIGN A NUMBER UNTIL AUGUST TIME
FRAME. HERE IS THE CLEAR FOCUS ON PATIENT CARE, BURDEN
REDUCTION. YOU’LL SEE AGAIN A LOT OF THINGS THAT I’VE
TALKED ABOUT. WHAT I WANTED TO DO WAS PAUSE HERE AND TALK
FOR A COUPLE MINUTES AND TALK ABOUT SOME FUTURE WORK WE’RE GOING TO BE DOING AND HOPEFULLY
REPORT BACK TO YOU. AGAIN AS RELATES TO VACCINE COUNSELING, WE
WANT TO FOCUS ON CHANGES TO TIME. YOU HAVE CREATION OF SHORTER PROLONGED CODE,
15 MINUTES. CURRENT CODE IS AN HOUR. THERE WAS A LARGE GAP BETWEEN WHEN YOU COULD
START TO REPORT ADDITIONAL TIME SPENT WITH A PATIENT. WHAT THE IDEA AROUND THIS WAS REALLY WHAT
THE WORK GROUP CALLED THE WORRIED WELL PATIENT. SOMEONE WHO HAS DONE A LOT OF RESEARCH, GOOGLED
A LOT OF INFORMATION, COMES IN WITH A STACK OF PAPER AND JUST TAKES LONGER TO COUNSEL
THE PERSON. OR THE PATIENT. AGAIN, THERE’S NOW ABILITY TO BILL ADDITIONAL
BILL FOR TIME SPENT IN A LOT OF LONGER CASES. THIS ISN’T YOUR TYPICAL PATIENTS BUT PATIENT
THAT TAKE MORE TIME IN THE CLINIC. AND THERE IS NOW GOING TO BE A MECHANISM FOR
MORE GRANULARITY AROUND PAYMENT. AGAIN, CURRENT WAIT TIME REPORTED, YOU CAN
ONLY DO IT WHEN COUNSELING OR COORDINATION OF CARE IS GREATER THAN 50%. USE MEDICAL DECISION MAKING, OR TIME? WE HAVE GOTTEN QUESTIONS AROUND THE POTENTIAL
GAMING OF JUST THE USE OF TIME BUT FRANKLY IF YOU USE MEDICAL DECISION MAKING ON A PER
MINUTE OR PER VISIT BASIS IT’S LIKELY TO GET PAID MORE THROUGH MEDICAL DECISION MAKING
ANYWAY. THE BENEFIT HERE IS JUST THAT FOR THOSE WHAT
WE CALL WORRIED WELL PATIENTS, MEDICAL DECISION MAKING IS LOW BUT TIME SPENT IS HIGH, THERE’S
NOW INCREASED AVENUES FOR PAYMENT. AGAIN, REMINDER THESE ARE OFFICE VISIT ONLY,
NOT GOING TO AFFECT PREVENTIVE COUNSELING CODES, A LOT OF VACCINES GIVEN THROUGH AS
WELL. WHAT’S IMPORTANT, WHAT I DON’T HAVE LISTED
HERE BECAUSE WE’RE STILL WORKING WITH THE SUMMIT, IMMUNIZATION SUMMIT, THE AMA IS WORKING
WITH A LOT OF MEDICAL SPECIALTIES WHO WORKED WITH THE E AND M WORKING GROUP. FIRST QUESTION IS SHOW ME THESE CASE STUDIES. WE WANT TO SHOW YOU EXAMPLES OF HOW YOU MAY
HAVE PREVIOUSLY REPORTED OFFICE VISITS, USING VACCINE COUNSELING, HOW IT MIGHT BENEFIT OR
BE REVISED THROUGH THE REVISIONS, WE’LL BE ABLE TO COME BACK AND PRESENT CLEAR CASES,
IT WILL SHOW WHAT I BELIEVE ARE IMPROVEMENTS IN THAT AREA ALSO CONTINUE A DIALOGUE TO SEE,
I KNOW HAVE YOU CERTAIN INITIATIVES AROUND CODING FOR THOSE. I WANT TO LEAVE YOU WITH THE WEBSITE THAT
WE HAVE. AMA EDUCATIONAL WEBSITE INCLUDES EVERYTHING
RELATED TO E AND M OFFICE VISITS, MODULES, IT’S SIMPLE. WHAT I HOPE IS THAT THIS IS THE BEGINNING
OF A DIALOGUE THAT WE CAN CONTINUE TO HAVE. YOU’VE HAD MY SLIDES FOR A LITTLE BIT OF TIME. I CAN CONTINUE TO CHECK IN AND I THINK THE
REAL VALUE IS COMING WHICH IS THE USE OF THE CASE STUDIES, NETWORK WITH SUMMIT, WHO ARE
DOING SOME REALLY GOOD WORK AND I THINK THE AMA PARTNERING WITH THEM IS A REALLY GOOD
OPPORTUNITY FOR US TO NOT ONLY PROMOTE THE BENEFITS OF THE E AND M OFFICE VISITS WHICH
WE BELIEVE WILL BE BENEFICIAL TO PATIENT CARE BUT ALSO I THINK BENEFICIAL OF SOME OF THE
WORK THAT THE GROUP IS DOING AS WELL. I CAN STICK AROUND SO I DON’T NEED TO ANSWER
QUESTIONS ON THE DAIS. THANK YOU.>>THANK YOU, ZACH. APPRECIATE YOUR PRESENTATION. [APPLAUSE]
ALL RIGHT. WE HAVE REACHED THE CLOSE OF OUR FORMAL PRESENTATIONS. IT IS NOW TIME FOR US TO TAKE PUBLIC COMMENT. OPERATOR, FIRST OF ALL, IF THERE ARE THOSE
IN THE ROOM TO MAKE PUBLIC COMMENT WE HAVE A MICROPHONE TO MY LEFT. WOULD ANY THAT WANT TO MAKE PUBLIC COMMENT
IN THE ROOM PLEASE MAKE THEIR WAY TO THE MICROPHONE. DO WE HAVE REQUESTS FOR PUBLIC COMMENT ON
THE PHONE, OPERATOR?>>WE DO. ONE MOMENT.>>OKAY. I’LL REMIND WHILE WE’RE COMING TO THE PUBLIC
COMMENT, OUR PUBLIC COMMENTS ARE LIMITED TO THREE MINUTES, VERBAL COMMENTS. IF PEOPLE WISH TO SUBMIT WRITTEN COMMENTS
THEY CAN BE SENT TO [email protected]>>THIS IS TERESA; EXECUTIVE DIRECTOR FOR
NATIONAL VACCINE INFORMATION CENTER. OUR ORGANIZATION EMBRACED INFORMED CONSENT
AND WORKED WITH CONGRESS TO DRAFT AND PASS NAGS CHILD AT VACCINE INJURY ACT OF 1986. SINCE THAT TIME VACCINE INFORMING REQUIREMENTS
UNDER FEDERAL LAW HAVE BEEN WATERED DOWN. PHYSICIAN COMMITTEE REPORTS FROM NATIONAL
ACADEMIES OF SCIENCE THAT INFORM THE COMPENSATION PROGRAM
HAVE CONTINUED TO GRADE SCIENCE AS INADEQUATE. THIS CREATES HEAVY BURN FOR THE INJURED TO
BE COMPENSATED AND CONTINUES TO SUFFER FROM PUBLIC LACK OF AWARENESS OF THE PROGRAM. REFERRING TO PARENTS OF ANTI VACCINE AS COUNTERPRODUCTIVE,
NOT SAYING ABOLISH. BUT RESPECT THE RIGHT TO INFORMED CONSENT
INCLUDING RIGHT TO REFUSE VACCINATION. TODAY THE PARENTS CONCERNED ABOUT CAR SEATS
RECENTLY FAILED AGAINST SIDE IMPACTS ARE NOT BEING REFERRED TO AS ANTI CAR SEATS. DEMEANING PARENTS WITH VACCINE CONCERNS, MANY
ARE LEGITIMATE, WILL NOT INSPIRE TRUST OR CHANGE MINDS. IT’S (INDISCERNIBLE) PUNITIVE MEASURES THAT
DISCRIMINATE AGAINST MINORITY THAT CHOOSE NOT TO USE ONE OR ALL VACCINES. TRUST IS ALSO LIMITED IN LIMITED SUPPLY FOR
DOCTORS, PERHAPS MEDICINE (INDISCERNIBLE) REPORTS FOR BEING REFUSED WELL CARE FOR ASKING
QUESTIONS ABOUT VACCINATION, OR EXERCISING THEIR RIGHT TO REFUSE UNDER THE INFORMED CONSENT
ETHIC. THE IMPACT IN BUILDING TRUST NOT ENCOURAGING
STATE MANDATES THAT DO NOT INCORPORATE FLEXIBLE EXEMPTION. NVAC COULD RECOMMEND RESEARCH TO CLOSE THE
DEFICITS NOTED BY THE INSTITUTES OF MEDICINE AND BEING MORE INCLUSIVE OF HESITANCY (INDISCERNIBLE)
AND RECOMMENDATION PROCESSES. PUBLIC HEALTH WOULD ALSO BE ABLE TO BUILD
TRUST, TALKING ABOUT VACCINE FAILURES RATHER THAN VACCINE SUCCESS. REGISTRIES SHOULD BE OPT IN. AS THEY ARE A PRIVACY CONCERN HELD BY MANY
PARENTS. CLEAR COMMUNICATIONS ABOUT DISEASE AND CONTACT
TO THE U.S. VERSUS AFRICA FOR EXAMPLE TALKING ABOUT MEASLES WOULD ALSO BE HELPFUL.>>MA’AM, WE’VE REACHED THE END OF OUR THREE
MINUTE COMMENT PERIOD. THANK YOU FOR YOUR COMMENTS. DO WE HAVE ANY OTHER COMMENTS ON THE LINE?>>I’M SHOWING NO OTHER COMMENTS AT THIS TIME.>>WE HAVE NO COMMENTS IN THE ROOM. I WANT TO THANK THE MEMBERS OF THE COMMITTEE,
THOSE THAT HAVE ATTENDED IN PERSONAL, AND THOSE THAT HAVE ATTENDED ONLINE FOR PARTICIPATING
IN OUR MEETING. THIS ENDS OUR FEBRUARY 13 14 NATIONAL VACCINE
ADVISORY COMMITTEE MEETING. LOOK FORWARD TO INTERACTING WITH YOU AGAIN
AT OUR JUNE MEETING. THE MEETING IS NOW ADJOURNED.

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